Aboriginal Health and the #NDIS #disability debate : Are Aboriginal people being left out of the new @NDIS funding system ?

One year into the national rollout of the NDIS we have 100,000 people with disability living more independent lives, accessing the services and equipment they need, participating in their communities, entering the workforce and contributing to the economy.

To have 100,000 people now receiving reasonable and necessary supports from the NDIS is a major milestone. ”

Minister for Social Services, Christian Porter, said the achievement represented significant progress for the NDIS see Part 1 below for full release

Read over 20 Disability NDIS articles published by NACCHO

 “Nevertheless, the speed of the NDIS rollout, as specified in Bilateral Agreements between governments, has put the scheme’s success and financial sustainability at risk. It has resulted in the NDIA focusing too much on meeting participant intake estimates and not enough on planning processes, supporting infrastructure and market development.

This focus is manifest in poor outcomes such as confusion for many participants about planning processes; rushed phone planning conversations; inadequate pre-planning support for participants; problems for providers with registering, pricing and receiving payment; and a lack of effective communication with both participants and providers.

For the scheme to achieve its objectives, the NDIA must find a better balance between participant intake, the quality of plans, participant outcomes, and financial sustainability.”

From the June Productivity Commission report or Part 4 Below

Download report HERE ndis-costs-position-overview

 

 ” The NSW peak body for Aboriginal children and families is advocating for urgent action to stop Aboriginal and Torres Strait Islander people “being left behind” by the National Disability Insurance Scheme.

Following the recent milestone of engaging 100,000 participants in the scheme, AbSec has raised concerns that only 5 per cent of that number were Aboriginal and Torres Strait Islander people, despite being 70 per cent more likely to experience disability than the general population.

They claim the figures were even more pronounced for Aboriginal and Torres Strait Islander children aged 14 and younger, who are more than twice as likely to have a disability as other children.”

AbSec is calling for long-term funding for Aboriginal community-controlled organisations, to equip them to provide disability services to their local communities.”

See Peak Body Demands Action to Stop NDIS Leaving Aboriginal People Behind Part 2 Below

 ” AbSec project support officer Brian Edwards, who is an NDIS participant himself, having lost his eyesight after developing a brain tumour at just 18 years of age, said it was not acceptable that those who needed the NDIS most were benefiting from it the least.

Aboriginal people experience disability differently to other Australians.

There’s no word meaning ‘disability’ in our languages – it’s not a widely recognised concept in our culture. So there’s a bit of a communication barrier from the start.”

The 27-year-old is currently developing his NDIS disability support plan, which will provide funds to help him access occupational therapy and keep his guide dog healthy see media SBS

” By any measure Aboriginal and Torres Strait Islander people with disability are amongst some of the most disadvantaged Australians; often facing multiple barriers to meaningful participation within their own communities and the wider community.

The prevalence of disability amongst Aboriginal and Torres Islander people is significantly higher than of the general population. Until recently, the prevalence of disability in Aboriginal and Torres Strait Islander communities has only been anecdotally reported. However, a report by the Commonwealth Steering Committee for the Review of Government Service Provision made the following conclusions:

The proportion of the indigenous population 15 years and over, reporting a disability or long-term health condition was 37 per cent (102 900 people). The proportions were similar in remote and non-remote areas. This measure of disability does not specifically include people with a psychological disability. [note 1]

The high prevalence of disability, approximately twice that of the non-indigenous population, occurs in Aboriginal and Torres Strait Islander communities for a range of social reasons “

SEE First Peoples Disability Network Australia (FPDN) Intro and Ten-point plan for the implementation of the NDIS in Aboriginal and Torres Strait Islander Communities VIEW HERE

See Part 3 below FPDN Ten-point plan for the implementation of the NDIS in Aboriginal and Torres Strait Islander Communities

Part 1 NDIS supporting 100,000 Australians : NDIS Press Release

“All Australians should be very proud of this landmark Scheme that replaces a system where the level of support a person with disability received was determined by their postcode and the vastly different funding provided from all levels of government.”

Whilst this milestone is significant, we know there is much more to do to ensure the best NDIS possible is delivered during the three-year transition to full scheme.”

Assistant Minister for Disability Services, Jane Prentice, said the NDIS was transforming people’s lives.

“In my discussions across Australia with NDIS participants, and their families and carers, it is clear that they believe the NDIS is making their lives better,” Assistant Minister Prentice said.

“The NDIS is focussed on building capacity and delivering outcomes so more people with a disability can participate in their community and enter the workforce and live the life they choose.”

The NDIS commenced on 1 July, 2013 in several trial locations across the country. During the three-year trial period, 30,000 Australians with disability entered the Scheme.

Following the successful trial, the national rollout commenced on 1 July, 2016. The NDIS is being introduced in stages around the country over three years, reflecting the scale and complexity of the reform and the need to ensure it delivers positive outcomes for participants. .

The NDIS will provide about 460,000 Australians under the age of 65 with a permanent and significant disability with the reasonable and necessary supports they need to live an ordinary life, including personal care and support, access to the community, therapy services and essential equipment

Part 2 Peak Body Demands Action to Stop NDIS Leaving Aboriginal People Behind

Following the recent milestone of engaging 100,000 participants in the scheme, AbSec has raised concerns that only 5 per cent of that number were Aboriginal and Torres Strait Islander people, despite being 70 per cent more likely to experience disability than the general population.

They claim the figures were even more pronounced for Aboriginal and Torres Strait Islander children aged 14 and younger, who are more than twice as likely to have a disability as other children.

The organisation is now calling for long-term funding for Aboriginal community-controlled organisations, to equip them to provide disability services to their local communities.

AbSec senior project officer for sector capacity Mick Scarcella told Pro Bono News there were a number of reasons Aboriginal people were not engaging with the scheme, which needed to be addressed.

“In Aboriginal communities, ‘people who are different’ are looked after by family with the minimum of fuss, they do not see them as disabled,”  Scarcella said.

“For example, little Johnny in a wheelchair wants to play at the beach, the local kids being family and friends will pick him up in his wheelchair and throw him into the water with the wheelchair so they can all play together. They see him as Little Johnny in the wheelchair, not Johnny with a disability.

“The other reasons for the low engagement comes to trust issues of government agencies and injustices of the past.

“Access to services is an issue as well. Many Aboriginal people have never accessed disability services because there is none in their local area.”

Scarcella, who said the figures quoted erred “on the conservative side” due to undiagnosed cases and lack of engagement, said it was important Aboriginal people had Aboriginal-run services to turn to.

“It has proven repeatedly that self-determination works in the Aboriginal Community,” he said.

“Aboriginal people need to be listened to and become part of the solution and not be told what their problem is and how to fix it, by people who have no idea of the significant cultural differences and family dynamics Aboriginal people have.

“Establishing a system that enables people to recruit family members needs more discussion as well. The way family members rally around a person with disability and focus on their positives instead of believing they are a burden to society is something mainstream Australia can learn from us.”

He said while a commitment to tailored Aboriginal services already existed in the NDIA’s Aboriginal and Torres Strait Islander Engagement Strategy, the reality on the ground showed “little reflection” to the strategy.

“All of these reports are being generated and are coming back showing all of this information we already knew but very little is being done to reflect the report findings and address the recommendations,” he said.

“One of these reports, without mentioning any names, is a 17-page document and the word Aboriginal or Indigenous is not even mentioned in it at all, not once which is very alarming, considering the fact of the low engagement so far to date with the Aboriginal communities.

“We need transparency and accountability for measurable outcomes not token promises and feel good gestures.”

AbSec project support officer Brian Edwards, who is an NDIS participant himself, having lost his eyesight after developing a brain tumour at just 18 years of age, said it was “not acceptable” that those who needed the NDIS most were “benefiting from it the least”.

“Aboriginal people experience disability differently to other Australians,” Edwards said.

“There’s no word meaning ‘disability’ in our languages – it’s not a widely recognised concept in our culture. So there’s a bit of a communication barrier from the start.”

He said said lifting the number of Aboriginal and Torres Strait Islander people accessing the NDIS was “absolutely vital” to closing the gap in health and wellbeing.

“The NDIS is being billed as a revolution in social services – but its impact can’t be truly revolutionary unless all of us are on-board,” he said.

Part 3 Ten-point plan for the implementation of the NDIS in Aboriginal and Torres Strait Islander Communities

Introduction

We are First Peoples Disability Network Australia (FPDN) – a national organisation of and for Australia’s First Peoples with disability, their families and communities. Our organisation is governed by First Peoples with lived experience of disability

By any measure Aboriginal and Torres Strait Islander people with disability are amongst some of the most disadvantaged Australians; often facing multiple barriers to meaningful participation within their own communities and the wider community.

The prevalence of disability amongst Aboriginal and Torres Islander people is significantly higher than of the general population. Until recently, the prevalence of disability in Aboriginal and Torres Strait Islander communities has only been anecdotally reported. However, a report by the Commonwealth Steering Committee for the Review of Government Service Provision made the following conclusions:

Ten-point plan

  • Recognise that the starting point is the vast majority of Aboriginal people with disability do not self-identify as people with disability. This occurs for a range of reasons including the fact that in traditional languages there are no comparable words for disability. Also, many Aboriginal people with disability are reluctant to take on the label of disability; particularly when they already experience discrimination based on their Aboriginality. In many ways disability is a new conversation in many communities. In these instances the NDIS is starting from a baseline position. As a consequence change in this area is likely to happen on a different timeline to that of the mainstream NDIS.
  • Awareness raising via a concerted outreach approach informing Aboriginal and Torres Strait Islander people with disability, their families and communities about their rights and entitlements, and informing Aboriginal and Torres Strait communities about the NDIS itself and how to work this new system effectively. There is no better way to raise awareness then by direct face-to-face consultation. Brochures and pamphlets will not be appropriate as this is a new conversation in many communities.
  • Establish the NDIS Expert Working Group on Aboriginal and Torres Strait Islander People with disability and the NDIS. In recognition of the fact that there is a stand-alone building block for the NDIS focused upon Aboriginal and Torres Strait Islander people with disability, FPDN views it not only as critical but logical that a specific Expert Working Group be established to focus on Aboriginal and Torres Strait Islander people with disability. The new working group would operate in the same way the four current working groups do, that is it would be chaired by two members of the National People with Disability and Carers Council. To ensure its effectiveness but also critically to influence prominent Aboriginal leaders as well as the disability sector, members would be drawn from Aboriginal and Torres Strait Islander people in community leadership positions, as well as involving prominent disability leaders. The FPDN believes such an approach is warranted not only because of the degree of unmet need that is well established but also because this has the potential to be a very practical and meaningful partnership between government, the non-government sector, and Aboriginal and Torres Strait Islander communities.
  • Build the capacity of the non-Indigenous disability service system to meet the needs of Aboriginal people with disability in a culturally appropriate way. Legislate an additional standard into the Disability Services Act focused upon culturally appropriate service delivery and require disability services to demonstrate their cultural competencies.
  • Conduct research on the prevalence of disability and a range other relevant matters. Critically, this work must be undertaken in partnership with Aboriginal and Torres Strait Islander people with disability to ensure a culturally appropriate methodology. There remains very little reference material about disability in Aboriginal and Torres Strait Islander communities. This needs to be rectified to ensure that we are getting a true picture of the lived experience of Aboriginal and Torres Strait Islander people with disability.
  • Recognise that  a workforce already exists in many Aboriginal and Torres Strait Islander communities that does important work, often informally. This work needs to valued and recognised, with the potential for employment opportunities in some communities.
  • Recognise that it’s not always about services. Many communities just need more resources so that they can continue to meet the needs of their own people with disabilities. There may be perfectly appropriate ways of supporting people already in place, however what is often lacking is access to current technologies or appropriate technical aids or sufficient training for family and community members to provide the optimum level of support.
  • Recruitment of more Aboriginal and Torres Strait Islander people into the disability service sector.
  • Build the capacity of the social movement of Aboriginal and Torres Strait Islanders with disability by supporting existing networks and building new ones in addition to fostering Aboriginal and Torres Strait Islander leaders with disability. These networks play a critical role in breaking down stigma that may exist in some communities but are also the conduits for change, and will be integral to the successful implementation of the NDIS in Aboriginal and Torres Strait Islander communities.
  • Aboriginal and Torres Strait Islander ‘Launch’ sites focused upon remote, very remote, regional and urban settings. It is critical that this major reform be done right. Therefore it is appropriate to effectively trial its implementation. To this end, FPDN can readily identify key communities that would be appropriate as trial sites.

Part 4 From the June Productivity Commission report

Key points
·      The National Disability Insurance Scheme (NDIS) is a complex and highly valued national reform. The scale, pace and nature of the changes it is driving are unprecedented in Australia. If implemented well, it will substantially improve the wellbeing of people with disability and Australians more generally.

·      The level of commitment to the success and sustainability of the NDIS is extraordinary. This is important because ‘making it work’ is not only the responsibility of the National Disability Insurance Agency (NDIA), but also that of governments, participants, families and carers, providers, and the community.

·      Based on trial and transition data, NDIS costs are broadly on track with the NDIA’s long‑term modelling. While there are some emerging cost pressures (such as higher numbers of children entering the scheme), the NDIA has put in place initiatives to address them. The benefits of the NDIS are also becoming apparent. Early evidence suggests that many (but not all) NDIS participants are receiving more disability supports than previously, and they have more choice and control.

·      Nevertheless, the speed of the NDIS rollout, as specified in Bilateral Agreements between governments, has put the scheme’s success and financial sustainability at risk. It has resulted in the NDIA focusing too much on meeting participant intake estimates and not enough on planning processes, supporting infrastructure and market development.

–     This focus is manifest in poor outcomes such as confusion for many participants about planning processes; rushed phone planning conversations; inadequate pre‑planning support for participants; problems for providers with registering, pricing and receiving payment; and a lack of effective communication with both participants and providers.

·      For the scheme to achieve its objectives, the NDIA must find a better balance between participant intake, the quality of plans, participant outcomes, and financial sustainability. Steps are now being taken by the NDIA to better balance these aspects. Greater emphasis is needed on pre‑planning, in‑depth planning conversations, plan quality reporting, and more specialised training for planners. The Commission is unable to form a judgment on whether such a refocus can be achieved while also meeting the rollout timetable.

·      The interface between the NDIS and other disability and mainstream services is also critical for participant outcomes and the financial sustainability of the scheme. Some disability supports are not being provided because of unclear boundaries about the responsibilities of the different levels of government. Governments must set clearer boundaries at the operational level around ‘who supplies what’ to people with disability, and only withdraw when continuity of service is assured.

·      A significant challenge is growing the disability care workforce required to deliver the scheme — it is estimated that 1 in 5 new jobs created in Australia over the next few years will need to be in the disability care sector. Present policy settings are unlikely to see enough providers and workers as the scheme rolls out. Some emerging shortages need to be mitigated by better price monitoring and regulation; better tailored responses to thin markets; formal and informal carers allowed to provide more paid care; and a targeted approach to skilled migration.

·      NDIS funding arrangements could better reflect the insurance principles of the scheme, including by allowing more flexibility around the NDIA’s operational budget and providing a pool of reserves. Funding contributions made ‘in‑kind’ must be phased out.

NACCHO Aboriginal Health #Strokeweek : #Fightstroke Aboriginal people are up to three times more likely to suffer a stroke than non-Indigenous

 

” Aboriginal and Torres Strait Islander people are up to three times more likely to suffer a stroke than non-Indigenous Australians and almost twice as likely to die, according to the Australian Bureau of Statistics. It’s an alarming figure and one that  prompted the National Stroke Foundation in 2016 to urge the Federal Government to fund a critical $44 million awareness campaign in a bid to close the gap .

The good news is most strokes are preventable and treatable.

However communities need to be empowered to protect themselves from this insidious disease.”

Sharon McGowan, Stroke Foundation CEO ( see full Aboriginal Stroke statistics part 2 below

Download the 48 Page support guide :

journeyafterstroke_indigenous_0

Read over 75 Stroke related articles published by NACCHO over past 5 years

“Never had I ever come across one ( stroke ) or heard much about them. I had nothing to do with them,”

When I woke up, I didn’t know what was going on. I couldn’t communicate. I couldn’t tell anyone I was still here. It was really scary. I’d never seen the effects of a stroke.

First, I lost my voice, then my vision, my [ability to] swallow and my movement of all my body parts. I lost all my bowel and bladder function. I’ve still got bad sight but I can see again. My speech took about six months.

With help from the Aboriginal Disability Network, they advocated to get me out and get the right support equipment at home “

For Tania Lewis, an Awabakal woman, stroke was something that only happened to older people. But in 2011, Tania suffered a severe stroke at the age of 39 that would leave her with permanent right-sided hemiplegia – paralysis of one side of the body.

Pictured above : Editor of NACCHO Communique and Stroke Foundation Consumer Council Board Member Colin Cowell (left ) with fellow stroke survivor Tania Lewis at an NDIS workshop in Coffs Harbour conducted by Joe Archibald (right )

Part 1 Stroke Foundation in 2016 called on government to close the gap

Originally published here

A stroke occurs when supply of blood to the brain is disturbed suddenly. The longer it remains untreated, the heightened the risk of stroke-related brain damage.

Medical treatment during the first onset of symptoms can significantly improve a sufferer’s chance of survival and of successful rehabilitation.

In Australia, stroke is the leading cause of long-term disability in adults, accounting for 25 per cent of all chronic disability. The NSF reports that roughly 50,000 strokes occur per year with over 437,000 people living with stroke across the country. While severity varies, two thirds of victims, like Tania, are left with impeding disabilities

But in 2011, Tania suffered a severe stroke at the age of 39 that would leave her with permanent right-sided hemiplegia – paralysis of one side of the body.

The burden of stroke doesn’t just fall on the patient, but can take a significant toll on family and carers.

“The doctor at the hospital tried to take Power of Attorney and Guardianship away from me and give it to the Guardianship Board, because he didn’t believe that [my husband] Len or anyone could look after me,” Tania recalls.

“I was put through hell. I figured life wasn’t worth living anymore because they took everything away from me. I couldn’t go home to my family. So I tried to off myself.

“Then all of a sudden, one day the doctor said, ‘You can go home. We can’t rehabilitate you anymore’. At home, I was having seizures for a while. My hubby wouldn’t sleep. He and his mum would take shifts looking after me. We tried to get assistance but there was nothing for young people. So one day, my husband collapsed on the lounge room floor from exhaustion. It was just a nightmare. That’s how I ended up in aged care.”

Tania spent the next two and a half years between three aged care facilities.

“I wouldn’t wish it upon nobody,” she says.

It was during her nightly ritual of chatting with her daughter via Facebook that Tania typed “young people in nursing homes” into Google. The search engine’s results would lead to her life-changing encounter with the YPINH.

“With help from the Aboriginal Disability Network, they advocated to get me out and get the right support equipment at home. Whatever I need, physio, OT – they’ve got my back. I can’t thank them enough for what they’ve done for me.”

Today, Tania is working with the Aboriginal Disability Network, helping Indigenous Australians navigate their way through the National Healthcare System.

It has long been recognised that Aboriginal and Torres Strait Islander people have a life expectancy that is approximately 20 years less than non-Indigenous Australians (Australian Bureau of Statistics). Recent data from the ABS shows that up to 80 per cent of the mortality gap can be attributed to chronic diseases such as heart disease, stroke, diabetes and kidney disease.

For many Aboriginal communities, especially those in remote regions, socio-economic factors play an important role. Kerin O’Dea from Darwin’s Menzies School of Health Research cites unemployment, poor education outcomes and limited access to fresh foods as key factors in her paper, Preventable chronic diseases among Indigenous Australians.

Lifestyle related risks such as smoking, alcohol misuse, stress, poor diet, and inadequate physical activity also need to be addressed, according to the Australian Institute of Health and Welfare .

But the first step, McGowan says, is for indigenous stroke sufferers to recognise the signs of a stroke in themselves and their family members. The NSF recommends the F.A.S.T. test as the most effective way to remember the most common signs of a stroke.

Face: Check their face. Has their mouth drooped?
Arms: Can they lift both arms?
Speech: Is their speech slurred? Do they understand you?
Time: Is critical. If you see any of these signs call 000 straight away.

“If I had known that because I’d lost my vision I had suffered a stroke, I could’ve put two and two together and got help, but I didn’t know anything,” Tania says.

“I was a heavy smoker, but not anymore – no way. Life’s too important. I didn’t ever know anything about a stroke – I was more thinking when you smoke, you can have lung problems and lose your fingers, like on the packets. But they don’t say anything about a stroke – they don’t advertise that stuff.”

The Stroke Foundation called on the Federal Government to fund an urgent $44 million campaign to address the gap in stroke care. For more information on stroke and the campaign, visit strokefoundation.com.au.

Part 2 Aboriginal Stroke Facts

From here

  • The incidence rate of stroke for Aboriginal and Torres Strait Islander Australians has been found to be 2.6 times higher for men and 3.0 for women (Australian Institute of Health and Welfare, 2008; Katzenellenbogan et al. 2010) compared to non-Aboriginal and Torres Strait Islander Australians and many suggest that these figures may in fact be underestimates (Thrift et al 2011).
  • Aboriginal and Torres Strait Islander Australians are known to experience stroke at a younger age than their non-Aboriginal and Torres Strait Islander counterparts, (Katzenellenbogen et al., 2010; Australian Institute of Health and Welfare, 2004) with 60% of Aboriginal and Torres Strait Islander non-fatal stroke burden occurring in the 25-54 year age-group compared to 24% in the non-Aboriginal and Torres Strait Islander group (Katzenellenbogen et al., 2010).
  • The prevalence of stroke is similarly significantly higher at younger ages among Aboriginal and Torres Strait Islander people (Katzenellenbogen 2013), with a significantly higher prevalence of co-morbidities among Aboriginal and Torres Strait Islander patients under 70 years of age, including heart failure, atrial fibrillation, chronic rheumatic heart disease, ischaemic heart disease, diabetes and chronic kidney disease. This reflects the increased clinical complexity among Aboriginal and Torres Strait Islander stroke patients compared with non-Aboriginal/Torres Strait Islander patients.
  • Aboriginal and Torres Strait Islander stroke patients aged 18–64 years have a threefold chance of dying or being dependent at discharge compared to non-Aboriginal and Torres Strait Islander patients (Kilkenny et al., 2012).

NACCHO @FPDNAus Aboriginal Health @NDIS 2016 progress report survey The National #Disability Strategy

 ” By any measure Aboriginal and Torres Strait Islander people with disability are amongst some of the most disadvantaged Australians; often facing multiple barriers to meaningful participation within their own communities and the wider community.

The prevalence of disability amongst Aboriginal and Torres Islander people is significantly higher than of the general population. Until recently, the prevalence of disability in Aboriginal and Torres Strait Islander communities has only been anecdotally reported. However, a report by the Commonwealth Steering Committee for the Review of Government Service Provision made the following conclusions:

The proportion of the indigenous population 15 years and over, reporting a disability or long-term health condition was 37 per cent (102 900 people). The proportions were similar in remote and non-remote areas. This measure of disability does not specifically include people with a psychological disability. [note 1]

The high prevalence of disability, approximately twice that of the non-indigenous population, occurs in Aboriginal and Torres Strait Islander communities for a range of social reasons “

SEE First Peoples Disability Network Australia (FPDN) Intro and Ten-point plan for the implementation of the NDIS in Aboriginal and Torres Strait Islander Communities VIEW HERE or Below

Read over 15 NACCHO NDIS Articles published

 See Background 1 below

The DSS need to improve under the National Disability Strategy.

We want to hear your thoughts about disability policy in Australia!

Are you a person with disability, a family member, a carer, or are you just interested in the rights of people with disability?

Tell us what you think about the lives of people with disability in Australia. This may include questions about things like health care, employment and access to the local community for people with disability.

Answer this survey and tell us how things have improved in the last two years. This feedback will help us understand what areas need to improve under the National Disability Strategy.

The National Disability Strategy

The National Disability Strategy 2010-2020 (the Strategy) helps us to create better policies, programs and communities so people with disability are able to lead happy and fulfilling lives.

The Strategy identifies six areas that people with disability are concerned about.  They are:

  1. Taking part in the in the community
  2. Your rights to fair treatment
  3. Work and money
  4. Personal and community support
  5. Learning and Skills
  6. Health and Wellbeing

What will my feedback be used for?

Your feedback will help inform the 2016 Progress Report.  Reporting is an important part of the Strategy.  Every two years we develop a progress report that looks at the achievements of the Strategy.  An important part of the report is finding out what people with disability, their families and carers think.  We also work with other government agencies and state and territory governments to collect feedback and data to help inform the 2016 Progress Report.

How can I access the survey?

The survey can be completed online via the 2016 Progress Report Stakeholder Survey page.

If you would like a hard copy of the survey to complete, please email nationaldisabilityst@dss.gov.au or ring (02) 6146 2507.

Please note: Requests for a hard copy of the survey must be made by 4 August 2017.

Completed hard copy surveys can be mailed to:

National Disability Policy Team
The Department of Social Services
Reply Paid
GPO Box 9820
Canberra ACT 2601

When will the survey open/close?

The survey will be open from Monday 17 July 2017 and will close on Monday 21 August 20

Background 1 of 2

What is the NDIS?

Will the NDIS mean more or less support?

Is the NDIS diagnosis based or needs based?

Am I eligible for the NDIS?

Where is the NDIS available now?

What supports does the NDIS cover?

How does the NDIS process work?

I have an NDIS plan. What’s next?

When will the NDIS be here for all Australians?

Where can we get more help

Full details below or download Help Guide Here :

NDIS your Questions answered Download

NACCHO Aboriginal Health #disability and @NDIS : Your Top 10 Questions answered about the National Disability Insurance Scheme

BACKGROUND from FPDN

Ten-point plan for the implementation of the NDIS in Aboriginal and Torres Strait Islander Communities

Introduction

We are First Peoples Disability Network Australia (FPDN) – a national organisation of and for Australia’s First Peoples with disability, their families and communities. Our organisation is governed by First Peoples with lived experience of disability

By any measure Aboriginal and Torres Strait Islander people with disability are amongst some of the most disadvantaged Australians; often facing multiple barriers to meaningful participation within their own communities and the wider community.

The prevalence of disability amongst Aboriginal and Torres Islander people is significantly higher than of the general population. Until recently, the prevalence of disability in Aboriginal and Torres Strait Islander communities has only been anecdotally reported. However, a report by the Commonwealth Steering Committee for the Review of Government Service Provision made the following conclusions:

The proportion of the indigenous population 15 years and over, reporting a disability or long-term health condition was 37 per cent (102 900 people). The proportions were similar in remote and non-remote areas. This measure of disability does not specifically include people with a psychological disability. [note 1]

The high prevalence of disability, approximately twice that of the non-indigenous population, occurs in Aboriginal and Torres Strait Islander communities for a range of social reasons, including poor health care, poor nutrition, exposure to violence and psychological trauma (e.g. arising from removal from family and community) and substance abuse, as well as the breakdown of traditional community structures in some areas. Aboriginal people with disability are significantly over-represented on a population group basis among homeless people, in the criminal and juvenile justice systems[note 2], and in the care and protection system (both as parents and children).[note 3]

The advent of the National Disability Insurance Scheme (NDIS) presents an opportunity for Aboriginal and Torres Strait Islander people with disabilities to engage – many for the first time – with the disability service system in a substantive way. Currently, most Aboriginal and Torres Strait Islander people with disabilities remain at the periphery of the disability service system. This continues to occur for a range of reasons some of which are well established. However, one factor that remains little understood is the reluctance of Aboriginal and Torres Strait Islander people with disabilities to identify as people with disability. This preference to not identify presents a fundamental barrier for the successful implementation of the NDIS. The First Peoples Disability Network (Australia) (FPDN) argues that it has a central role in addressing not only this fundamental barrier but also in facilitating the roll out of the NDIS more broadly into Aboriginal and Torres Strait Islander communities.

FPDN argues passionately that for positive change to happen in the lives of Aboriginal and Torres Strait Islander people with disability, the change must be driven by community itself. It cannot be imposed, implied, intervened or developed with well-meaning intention from an external service system that the vast majority of Aboriginal and Torres Strait Islander people with disabilities have little or no experience of in the first place.

Throughout many communities across the country, Aboriginal and Torres Strait Islander people with disability are supported and accepted as members of their communities. However, many communities lack the resources to adequately support people with disability. Furthermore, the service system tends to operate from a ‘doing for’ as opposed to ‘doing with’ approach, which only further disenfranchises communities because they simply do not feel that they can self-direct their future. The NDIS does have the potential to address some of these concerns by giving Aboriginal and Torres Strait Islander people with disability the opportunity to self-direct their funding, for instance. The challenge in this area will be that many Aboriginal and Torres Strait Islander people with disability have had little or no experience in self-managing funds.

It must be remembered that in many ways the social movement of Aboriginal and Torres Strait Islander people with disability is starting from an absolute baseline position. This is reflected, for example, by the fact that few Aboriginal and Torres Strait Islander people with disability have an understanding of the language of the disability service system. It is the view of FPDN that the application of the NDIS in Aboriginal and Torres Strait Islander communities will need to have a different look and approach to what is advocated for with regard the rest of the Australian population. It may be that the application of the NDIS in Aboriginal and Torres Strait Islander communities takes a longer process. But the FPDN argues that it is critical to get it right as it is the experience of many Aboriginal and Torres Strait Islander people that they are usually the first to be blamed when new programs are not taken up by Aboriginal and Torres Strait Islander people.

FPDN has developed a 10-point plan for the implementation of the NDIS in Aboriginal and Torres Strait Islander people with disabilities. The development of this 10 point plan is based upon extensive consultation as well as drawing upon the decade long experience of the FPDN in advocating for the rights of Aboriginal and Torres Strait Islanders people with disabilities.

The plan was launched in May 2013 at Parliament House, Canberra.

Ten-point plan

  • Recognise that the starting point is the vast majority of Aboriginal people with disability do not self-identify as people with disability. This occurs for a range of reasons including the fact that in traditional languages there are no comparable words for disability. Also, many Aboriginal people with disability are reluctant to take on the label of disability; particularly when they already experience discrimination based on their Aboriginality. In many ways disability is a new conversation in many communities. In these instances the NDIS is starting from a baseline position. As a consequence change in this area is likely to happen on a different timeline to that of the mainstream NDIS.
  • Awareness raising via a concerted outreach approach informing Aboriginal and Torres Strait Islander people with disability, their families and communities about their rights and entitlements, and informing Aboriginal and Torres Strait communities about the NDIS itself and how to work this new system effectively. There is no better way to raise awareness then by direct face-to-face consultation. Brochures and pamphlets will not be appropriate as this is a new conversation in many communities.
  • Establish the NDIS Expert Working Group on Aboriginal and Torres Strait Islander People with disability and the NDIS. In recognition of the fact that there is a stand-alone building block for the NDIS focused upon Aboriginal and Torres Strait Islander people with disability, FPDN views it not only as critical but logical that a specific Expert Working Group be established to focus on Aboriginal and Torres Strait Islander people with disability. The new working group would operate in the same way the four current working groups do, that is it would be chaired by two members of the National People with Disability and Carers Council. To ensure its effectiveness but also critically to influence prominent Aboriginal leaders as well as the disability sector, members would be drawn from Aboriginal and Torres Strait Islander people in community leadership positions, as well as involving prominent disability leaders. The FPDN believes such an approach is warranted not only because of the degree of unmet need that is well established but also because this has the potential to be a very practical and meaningful partnership between government, the non-government sector, and Aboriginal and Torres Strait Islander communities.
  • Build the capacity of the non-Indigenous disability service system to meet the needs of Aboriginal people with disability in a culturally appropriate way. Legislate an additional standard into the Disability Services Act focused upon culturally appropriate service delivery and require disability services to demonstrate their cultural competencies.
  • Conduct research on the prevalence of disability and a range other relevant matters. Critically, this work must be undertaken in partnership with Aboriginal and Torres Strait Islander people with disability to ensure a culturally appropriate methodology. There remains very little reference material about disability in Aboriginal and Torres Strait Islander communities. This needs to be rectified to ensure that we are getting a true picture of the lived experience of Aboriginal and Torres Strait Islander people with disability.
  • Recognise that  a workforce already exists in many Aboriginal and Torres Strait Islander communities that does important work, often informally. This work needs to valued and recognised, with the potential for employment opportunities in some communities.
  • Recognise that it’s not always about services. Many communities just need more resources so that they can continue to meet the needs of their own people with disabilities. There may be perfectly appropriate ways of supporting people already in place, however what is often lacking is access to current technologies or appropriate technical aids or sufficient training for family and community members to provide the optimum level of support.
  • Recruitment of more Aboriginal and Torres Strait Islander people into the disability service sector.
  • Build the capacity of the social movement of Aboriginal and Torres Strait Islanders with disability by supporting existing networks and building new ones in addition to fostering Aboriginal and Torres Strait Islander leaders with disability. These networks play a critical role in breaking down stigma that may exist in some communities but are also the conduits for change, and will be integral to the successful implementation of the NDIS in Aboriginal and Torres Strait Islander communities.
  • Aboriginal and Torres Strait Islander ‘Launch’ sites focused upon remote, very remote, regional and urban settings. It is critical that this major reform be done right. Therefore it is appropriate to effectively trial its implementation. To this end, FPDN can readily identify key communities that would be appropriate as trial sites.

NACCHO Aboriginal Health #Disability #NDIS : ACCHO Submissions to #NDIS close 12 July 2017

 ” This position paper outlines the Productivity Commission’s early thinking on NDIS costs. The purpose of this position paper is to seek feedback on the Commission’s preliminary conclusions, and on any additional issues that should be considered before the public release of the final study report.

This position paper was released on 14 June 2017. You are invited to examine the paper and to make a written submission or comment by Wednesday 12 July 2017.”

People who want to comment or make a submission for the final report, due to be released in September, can do so at pc.gov.au

Download the PC Overview and Position paper here

ndis-costs-position-overview

ndis-costs-position

or Download MS Word copies here

‘The National Disability Insurance Scheme (NDIS) is a major, complex national reform — the largest social reform in Australia since the introduction of Medicare,’

Social Policy Commissioner Richard Spencer

 ” For Aboriginal and/or Torres Strait Islander people living with disability and their carers, this is a much-needed conversation.

FPDN estimates 60,000 Aboriginal and/or Torres Strait Islander people will potentially be eligible for NDIS. Whilst there might be new opportunities for First Peoples through the NDIS, such as a growth in Aboriginal and/or Torres Strait Islander health and disability services workforce, valid concerns are being raised.

Some of these include how effective NDIS rollout will be in rural and remote Aboriginal and Torres Strait Islander communities, and concerns of eligibility criteria not being inclusive or culturally relevant for First Peoples living with disabilities ”

See all NACCHO posts Disability NDIS

OR

NACCHO Aboriginal Health #disability and @NDIS : Your Top 10 Questions answered about the National Disability Insurance Scheme

 ” For many, language barriers can prevent meaningful engagement with planning processes. Neami National (sub. 63, p. 6) said that ‘consumers without English as their first language describe difficulties in participating in planning and in getting plans that they can fully implement on account of their language needs’.

This is an issue which disproportionately affects Aboriginal and Torres Strait Islander communities: English is a second language for many Indigenous people in remote communities. The majority of participants in Barkly identify as being Aboriginal or Torres Strait Islander and for 67% English is not their first language. Many have limited capacity to understand or read it.

This has a significant impact on their ability to have genuine input into the formulation of their plans and also impacts on decision making and choice. (Brain Injury SA, sub. 116, p. 3) “

From Page 172 Submission

.

In 2020, when the NDIS is fully rolled out, around 475 000 people with disability are expected to receive individualised supports, at an estimated cost of $22 billion per year.

In a position paper released today, the Commission finds that while it is early days in the transition to full scheme, the NDIS is on track in terms of costs.

KEY POINTS

  • The National Disability Insurance Scheme (NDIS) is a complex and highly valued national reform. The scale, pace and nature of the changes it is driving are unprecedented in Australia. If implemented well, it will substantially improve the wellbeing of people with disability and Australians more generally.
  • The level of commitment to the success and sustainability of the NDIS is extraordinary. This is important because ‘making it work’ is not only the responsibility of the National Disability Insurance Agency (NDIA), but also that of governments, participants, families and carers, providers, and the community.
  • Based on trial and transition data, NDIS costs are broadly on track with the NDIA’s long-term modelling. While there are some emerging cost pressures (such as higher numbers of children entering the scheme), the NDIA has put in place initiatives to address them. The benefits of the NDIS are also becoming apparent. Early evidence suggests that many (but not all) NDIS participants are receiving more disability supports than previously, and they have more choice and control.
  • Nevertheless, the speed of the NDIS rollout, as specified in Bilateral Agreements between governments, has put the scheme’s success and financial sustainability at risk. It has resulted in the NDIA focusing too much on meeting participant intake estimates and not enough on planning processes, supporting infrastructure and market development.
    • This focus is manifest in poor outcomes such as confusion for many participants about planning processes; rushed phone planning conversations; inadequate pre-planning support for participants; problems for providers with registering, pricing and receiving payment; and a lack of effective communication with both participants and providers.
  • For the scheme to achieve its objectives, the NDIA must find a better balance between participant intake, the quality of plans, participant outcomes, and financial sustainability. Steps are now being taken by the NDIA to better balance these aspects. Greater emphasis is needed on pre-planning, in-depth planning conversations, plan quality reporting, and more specialised training for planners. The Commission is unable to form a judgment on whether such a refocus can be achieved while also meeting the rollout timetable.
  • The interface between the NDIS and other disability and mainstream services is also critical for participant outcomes and the financial sustainability of the scheme. Some disability supports are not being provided because of unclear boundaries about the responsibilities of the different levels of government. Governments must set clearer boundaries at the operational level around ‘who supplies what’ to people with disability, and only withdraw when continuity of service is assured.
  • A significant challenge is growing the disability care workforce required to deliver the scheme — it is estimated that 1 in 5 new jobs created in Australia over the next few years will need to be in the disability care sector. Present policy settings are unlikely to see enough providers and workers as the scheme rolls out. Some emerging shortages need to be mitigated by better price monitoring and regulation; better tailored responses to thin markets; formal and informal carers allowed to provide more paid care; and a targeted approach to skilled migration.
  • NDIS funding arrangements could better reflect the insurance principles of the scheme, including by allowing more flexibility around the NDIA’s operational budget and providing a pool of reserves. Funding contributions made ‘in-kind’ must be phased out.

 

‘While there are some emerging cost pressures, such as higher than expected numbers of children entering the scheme, the National Disability Insurance Agency (NDIA) has put in place initiatives to address these cost pressures,’ Commissioner Angela MacRae said.

‘Given the extraordinary scale, pace and nature of the changes the scheme is driving, we are seeing some big challenges. A key concern is the speed of the rollout and its impact on the experience of participants and providers through the planning process, plan quality and market development,’ Mr Spencer said.

‘A real challenge is growing the disability care workforce needed to deliver the scheme. As many as one in five new jobs created in Australia over the next few years will need to be in the disability sector. There are unlikely to be enough providers and workers as the scheme rolls out under current policy settings,’ Mrs MacRae said.

The paper finds that the NDIA must place greater emphasis on pre-planning, in-depth planning conversations, plan quality reporting, and more specialised training for planners. And governments must set clearer boundaries around who supplies what, so that people with a disability are assured of continuity of service.

‘Everyone wants the NDIS to work, but there are challenges to be overcome and work is needed by all governments. Putting the enormous goodwill behind the NDIS into action is needed now more than ever,’ Mr Spencer said.

The Productivity Commission’s position paper is National Disability Insurance Scheme (NDIS) Costs.

People who want to comment or make a submission for the final report, due to be released in September, can do so at pc.gov.au

NACCHO Aboriginal Health: 10 Key #disability #NDIS priorities and strategies for #LivingOurWay Conference

Important questions about the impacts of the National Disability Insurance Scheme (NDIS) upon Aboriginal and Torres Strait Islander people will be addressed during a conference hosted in NSW this week by the First Peoples Disability Network Australia.

As many Australians prepare for the rollout of the National Disability Insurance Scheme (NDIS), some are asking: will it fit our way of living?

For Aboriginal and/or Torres Strait Islander people living with disability and their carers, this is a much-needed conversation.

FPDN estimates 60,000 Aboriginal and/or Torres Strait Islander people will potentially be eligible for NDIS. Whilst there might be new opportunities for First Peoples through the NDIS, such as a growth in Aboriginal and/or Torres Strait Islander health and disability services workforce, valid concerns are being raised.

Some of these include how effective NDIS rollout will be in rural and remote Aboriginal and Torres Strait Islander communities, and concerns of eligibility criteria not being inclusive or culturally relevant for First Peoples living with disabilities.:

Writer Karen Wyld is covering the event for the Croakey Conference News Service, see full report HERE

Download the 3 day program

Conference-Program-First-Peoples-Living-Our-Way-3 

On 2 May 2017 the first of the Redfern Statement alliance workshops was held on the land of the Gadigal People of the Eora Nation. We were welcomed to Gadigal land by Ms Yvonne Weldon. We acknowledged the traditional owners of the Gadigal lands, and paid our respects to Elders past and present.

The Redfern Statement workshop was hosted by the First Peoples Disability Network (FPDN), the peak organisation of and for Aboriginal and Torres Strait Islander people with disability, in collaboration with The National Congress of Australia’s First Peoples.

Community Elders and representatives from First Nations and Disability peak organisations participated, including representatives of First Peoples community controlled health, justice, housing, family violence, and community service organisations, alongside representatives from the Department of the Prime Minister and Cabinet and the Department of Social Services and other key government agencies involved in setting Australian government disability policy.

Senator the Hon. Nigel Scullion, Minister for Indigenous Affairs was unable to attend but provided a statement of support, describing the workshop as “an important step in our genuine and ongoing discussion to work in partnership with Aboriginal and Torres Strait Islander people on real practical solutions”. The full statement was read to attendees by Uncle John Baxter during the morning session.

The Hon. Jane Prentice MP, Assistant Minister for Social Services and Disability Services, attended the afternoon session and discussed the outcomes with participants. We welcomed the opportunity to provide the Assistant Minister with an overview of the major themes, issues, and priorities that emerged throughout the workshop.

Background

In June 2016, in the lead up to the Federal Election Campaign, Aboriginal and Torres Strait Islander leaders from health, justice, children and families, disability, and family violence prevention sectors united to call upon Australia’s political leaders to recognise the aggravated disadvantage of Australia’s First Peoples, and the fundamental role of Australia’s First Peoples and their community-controlled organisations in solving the root causes of this disadvantage, known as the The Redfern Statement.

The Redfern Statement calls for changes across these sectors through structured engagement with Aboriginal and Torres Strait Islander people, and is supported by more than 30 major mainstream organisations. The disability workshop is one of five workshops that will be conducted this year. The relevant sector peak organisation will collaborate with the National Congress of Australia’s First Peoples to produce the remaining workshops. Each workshop will focus on a particular service sector.

This Workshop was convened with the financial support of the Australian Government to enable us to deliver on the promise of The Redfern Statement – to articulate the solutions to the disadvantage experienced by our people with disability and our role in overcoming this disadvantage.

The workshop also responds to the Government’s commitment in the National Disability Strategy 2010-2020 (the Strategy) Second Implementation Plan: Driving Action 2015-2018  to hold an annual solutions-focussed workshop focussed on improving outcomes for Aboriginal and Torres Strait Islander people with disability.

Key issues and concerns

During our discussions we identified the following key issues and concerns:

  • The prevalence of disability among Aboriginal and Torres Strait Islander population groups is substantially higher than that for the general population. The best available data would suggest it is at least twice that of non-Aboriginal population groups.
  • There are at least 60,000 Aboriginal and Torres Strait Islanders across Australia who live with a severe or profound disability and who thus are part of the core target group for the National Disability Insurance Scheme.
  • The disadvantage experienced by Aboriginal and Torres Strait Islanders with disability and their families is intersectional. It arises because of the systemic barriers they face as a person who is both Aboriginal or Torres Strait Islander AND a person with disability. Intersectionality compounds the disadvantage, in that the systemic barriers accumulate across a person’s life. Aboriginal and Torres Strait Islanders with disability are, for example, many times more likely than other Indigenous persons, and many more times likely than non-Indigenous persons to experience family violence, removal from their families, and to be in contact with and incarcerated in the criminal justice system.
  • The effect of intersectionality on the health and social outcomes of Aboriginal and Torres Strait Islander people with disability can now be quantitatively demonstrated using data from the Australian Bureau of Statistics (ABS).
  • There is a serious problem of under-reporting of impairment and disability in mainstream service systems. Therefore, Aboriginal and Torres Strait Islanders with disability do not always receive appropriate supports and opportunities, even in circumstances where these supports would be readily available.
  • A major contributing factor in the under-reporting of Aboriginal and Torres Strait Islanders with disability is the entrenched distrust of mainstream service systems within our communities, and the subsequent reluctance of our families and communities to engage with these systems out of fear that this will result in unwanted surveillance and intrusion, including the removal of our children from our families.
  • Australia’s First Peoples have a strong positive tradition of inclusion of persons with disability within our families and communities. We have never, and do not now, see our family and community members with disability as outsiders. This is a major source of strength. The inclusion of people with disability within Aboriginal and Torres Strait Islander communities can be demonstrated in the ABS data.
  • We are capable of, and ready to do, the work that is necessary to overcome the disadvantage experienced by Aboriginal and Torres Strait Islanders with disability. We call upon government and the wider Australian community and our governments to recognise and support our capabilities to do so.

Key priorities and strategies

We also agreed as a collective to formulate a new national 10-point plan to address the unmet needs of our people with disability. The plan will be launched later in the year and the basis of this plan is:

  1. The establishment and resourcing of an Aboriginal Community Controlled Disability Service Sector for the provision of disability supports by Aboriginal and Torres Strait Islander people with disability for their communities;
  2. Address the systemic barriers facing Aboriginal and Torres Strait Islander people in accessing the National Disability Insurance Scheme (NDIS);
  3. Prioritise early intervention to ensure supports and services are available over the long-term;
  4. Recognise and acknowledge emerging skills and capacity within community;
  5. Resource a community-directed research strategy which specifically focuses on Aboriginal and Torres Strait Islander disability;
  6. Peer to peer leadership; that is Aboriginal and Torres Strait Islander people with disability leading the engagement with community themselves;
  7. Develop and implement an access to justice strategy for First People with disability, particularly those with cognitive impairment and intellectual disability;
  8. Creating an inclusive education, employment and economic opportunity for Aboriginal people with disability as well as creating opportunities for employment for Aboriginal people more broadly in the disability sector;
  9. Recognising that not all people with disability will be eligible for the NDIS, and ensuring that appropriate companion schemes and services are available and accessible for Aboriginal and Torres Strait Islander people over the long-term;
  10. Develop strategies to address the detrimental effects upon the health and wellbeing of Aboriginal and Torres Strait Islander people with disability who experience the combined effects of racism and ableism.

In conclusion, we acknowledged that common goals, and respectful partnerships such as those within the Redfern Statement alliance and between FPDN and governments are key to achieving the outcomes outlined above. Together we must stay the course.

Documents in PDF format:

Redfern Statement Disability Workshop Communique May 2017.

NACCHO Aboriginal Health #HealthBudget2017 : Peak Indigenous bodies and Opposition parties respond to #Budget2017

 ” Treasurer Scott Morrison says the 2017 Budget will show that the Government understands the frustrations of many Australians.

For Indigenous Australians, the greatest frustration is the slow pace of change in closing the gap in disadvantage, and the continuation of poor health and wellbeing.

The Australian Government must commit to a new relationship and genuine partnership with Aboriginal and Torres Strait Islander people in decisions made about Indigenous Australians; decisions that address housing, health, education, justice, disability and representation.

If the Government is serious about closing the gap on Indigenous disadvantage, it is essential that secure, long term funding be allocated to:

 1.Building the Aboriginal and Torres Strait Islander medical workforce;

 2.Resourcing the Implementation Plan for the National Aboriginal and Torres Strait Islander Health Plan 2013-2023 (NATSIHP); and

3. Tackling and abolishing racism in the Australian health system.”

Does the 2017 Budget show that the Government understands the frustrations of Indigenous Australians? Questions  the Australian Indigenous Doctors Association see article 2 below

 ” Peak Indigenous groups have responded to the federal budget, saying its new measures are out of touch and fail to reach real solutions for Indigenous Australians .

National Congress of Australia’s First People Co-Chair Rod Little says Indigenous people are invisible. “

From NITV The Point report Nakari Thorpe ( see article 1 Below )

In February of this year the Prime Minister reported that only one of the six targets that have been set for closing the gap is on track, and those targets don’t go near representing all of the social and economic issues that need addressing.”

The government is failing to adequately address the disadvantage experienced by the nation’s First Peoples, failing to inject any sense of urgency in turning around these issues, and failing to listen to, and work with First Peoples,

That government needs listen to, and work with, First Peoples to accelerate progress is unquestionable, but nowhere is the urgency to do that evident in this Budget.”

If the government can afford to build a dozen multi-billion dollar submarines, or give tax cuts to corporations, it can afford to address the wellbeing of just 3% of the population, and the First Peoples of the land,”

Aboriginal and Torres Strait Islander rights organisation ANTaR today expressed dismay at the lack of urgency and substance in the Federal Budget to address the ongoing disadvantage of Aboriginal and Torres Strait Islander people. (see article 3 below )

“The 2017 budget fails to deliver for Aboriginal and Torres Strait Islander Australians,” leader of the opposition Bill Shorten, Senator Patrick Dodson, Warren Snowden, Linda Burney and Senator Malarndirri McCarthy said in a joint statement.

While the budget includes piecemeal proposals for better employment and health outcomes, there is no comprehensive strategy to make progress on the stalled Closing the Gap targets, or to address other longstanding issues such as the incarceration crisis.

The budget also fails to secure the future of the National Congress of Australia’s First Peoples with proper funding. Congress is our independent, elected, national Indigenous representative body – it must be respected and resourced.

The government’s entire approach to Indigenous affairs is defined by savage cuts to services, a loss of local control, a failure to listen to Indigenous voices, and policy-making which is paternalistic and overly bureaucratic.”

 Leader of the opposition Bill Shorten, Senator Patrick Dodson, Warren Snowden, Linda Burney and Senator Malarndirri McCarthy said in a joint statement.

Download Full Press Release here Labor Budget 2017

“Whatever happened to Prime Minister Turnbull’s flagship health reform? This time last year Malcolm was out there spruiking his Health Care Homes initiative to revolutionise Medicare for chronic disease, yet last night we saw the funding for this initiative cut and kicked two years down the road while trial sites are delayed until October.

“Not only are they unpicking their own reform program designed to treat people with chronic illnesses, there is next to nothing for programs to help prevent Australians developing debilitating chronic diseases like obesity, diabetes and heart disease in the first place, particularly in children.

In case there was any doubt, this budget also confirms this Government has no commitment to Closing the Gap for Aboriginal and Torres Strait Islander peoples’ health.”

Leader of the Australian Greens Dr Richard Di Natale

Aboriginal and Torres Strait Islander issues in the budget largely unaddressed: Greens

The Treasurer might have vaguely mentioned Aboriginal and Torres Strait Islander issues in his budget speech, but the detail doesn’t back up the rhetoric, Australian Greens Senator Rachel Siewert said today.

“What you don’t see included in the budget papers can be just as concerning as what you do include.

This is definitely the case for Aboriginal and Torres Strait Islander issues in the 2017 Federal Budget.

“There is no commitment resources to the Redfern statement, this is despite it being a document backed by Aboriginal and Torres Strait Islander organisations and peoples as essential to close the gap.

“The Redfern Statement is a strong blueprint to close the gap and finally reconciling our First Peoples but remains unaddressed by the Federal Government, who keep saying they will listen but then don’t.

“There is also no addition funding for National Congress of Australia’s First People. At the moment that team are under resourced, having had their funding cut in a previous budget, they need more funding desperately.

“The Abbott Government gutted half a billion from Aboriginal and Torres Strait Islander funding when they rolled out the Indigenous Advancement Strategy. Although there has been a marginal increase, it does not come close to topping that money back up to original levels.

“When key markers to Close the Gap continue to go backwards, and the Minister is scratching his head as to why, perhaps it is because they removed a lot of money and pushed many of the services to be mainstream rather than Aboriginal-led.

“The Government should actually listen to the host of Aboriginal voices who are offering solutions to reduce disadvantage and reconcile with our First Peoples. We need to be moving forwards, not backwards”.

Article 1 : From NITV The Point report Nakari Thorpe 

Indigenous peak bodies have converged on Canberra this week to respond to the federal budget, announced on Tuesday night by Treasurer Scott Morrison.

View NITV Interview Here

They say the Turnbull Government is out of touch and many of its measures affecting Indigenous Australians are not enough. They’re calling on the Coalition to work with First Nations peoples to reach real solutions.

National Congress of Australia’s First People Co-Chair Rod Little says Indigenous people are invisibile.

“We should be featuring more prominently in a national budget,” he said.

Congress Co-Chair Jackie Huggins agrees.

“We have been lumped in with a whole range of the people and really buried under those statistics,” she said.

The Secretariat of National Aboriginal and Islander Child Care CEO, Gerry Moore, says the budget fails Indigenous children.

“This isn’t anywhere near enough and the government need to think seriously about the children of our future, Aboriginal and Torres Strait Islander children,” he said.

NATSILS CEO Cheryl Axleby says while she welcomes the coalition’s reversal of cuts to community legal centres, she warns against action stopping there.

“We’re calling for a justice target, in line with the Closing the Gap targets, we need to have a focus on justice if we really want to see solutions to addressing this issue in Australia,” she said.

Damien Griffis, from the First People’s Disability Network, says the Medicare price hike to fully fund the National Disability Insurance Scheme is not enough.

He says an Aboriginal-owned and operated disability service system is needed.

“That needs to happen urgently. It needed to happen yesterday frankly, so that we can get equal and fair access to the NDIS,” he said.

Labor MP Linda Burney says the Government’s economic blueprint neglects Indigenous Australians.

“It has no vision, it does not anticipate the real issues that are coming up for the Aboriginal space. It also is going to put more money into the pockets of bureaucracies and consultants not out there on the ground where it’s needed,” she told NITV News.

Article 2 Does the 2017 Budget show that the Government understands the frustrations of Indigenous Australians?

Download the AIDA Press Release Australian Indigenous Doctors Assoc Budget 2017

Treasurer Scott Morrison says the 2017 Budget will show that the Government understands the frustrations of many Australians. For Indigenous Australians, the greatest frustration is the slow pace of change in closing the gap in disadvantage, and the continuation of poor health and wellbeing.

The announcement to lift the freeze on Medicare rebates and increase the Medicare levy is encouraging for disadvantaged Australians. The lift allowing GP’s to charge more for their services, will hopefully see bulk-billing practices remain operational or increase in number, and the increase to the levy to provide long term secure funding for the NDIS is wanted.

AIDA welcomes the announcement of the Indigenous Research Fund but would have preferred more commitment to resourcing existing Indigenous health programs and service delivery. We also welcome the budget measures that are specifically aimed at closing the employment gap, but we more commitment around the other health targets in needed.

It has also been promising to see measures to enhance the delivery and relevance of the Indigenous Advancement Strategy. We note that it has already been reviewed by a Senate committee and the Australian National Audit Office and look forward to the implementation of the recommendations contained in those reports.

The Australian Government must commit to a new relationship and genuine partnership with Aboriginal and Torres Strait Islander people in decisions made about Indigenous Australians; decisions that address housing, health, education, justice, disability and representation.

Article 3 ANTAR

Aboriginal and Torres Strait Islander rights organisation ANTaR  suggested what could be funded immediately to start to signal that government is taking the health and wellbeing of First Peoples seriously.

1. Restoring previous funding levels to the National Congress of Australia’s First Peoples as the national representative body for Aboriginal and Torres Strait Islander peoples

2. Funding the establishment of peak Aboriginal and Torres Strait Islander housing and education organisations to provide a national voice for those issues

3. Provide sufficient funding for the Implementation Plan for the National Aboriginal and Torres Strait Islander Health Plan 2013-2023

4. Fund the development of a long-term National Aboriginal and Torres Strait Islander Social and Cultural Determinants of Health Strategy

5. Fund a national Inquiry into institutional racism in the health system

6. Prioritise disability services for Aboriginal and Torres Strait Islander people, including through making disability a priority in the Indigenous Advancement Strategy and quarantine an equitable share entitlement of the NDIS according to need

7. Ensure adequate funding for Aboriginal Family Violence Protection Legal Services, including through allocating funding to ensure there is national coverage (regardless of geographic location) of FVPLS services.

8. Ensure funding for Aboriginal and Torres Strait Islander Legal Services (ATSILS) that is able to meet the level of need, including through implementing the Productivity Commission’s Recommendation from its Access to Justice Arrangements Inquiry Report to provide an additional $120 million of Commonwealth funding to the Legal Assistance sector.

 

Aboriginal Health #Redfernstatement : First Peoples #RSDisability Network workshops #WeHaveTheSolutions

” By any measure, Aboriginal and Torres Strait Islander people with disability are among some of the most disadvantaged Australians often facing multiple barriers to their meaningful participation within their own communities and the wider community. Meeting the needs of Aboriginal and Torres Strait Islander people with disability is one the most critical social justice issues in Australia today.

The prevalence of disability among Aboriginal and Torres Islander people is significantly higher than that of the general population.

There is a significant opportunity to address the disadvantage experienced by Aboriginal and Torres Strait Islander people with disability in coming years.”

The time has come to revisit our 10 point plan and update it in light of the ongoing rollout of the NDIS and the changing disability sector. The ten-point plan must apply to all First Peoples with disability as many will not be eligible for the NDIS.”

First Peoples Disability Network is the peak organisation representing Aboriginal and Torres Strait Islander people living with disability will be meeting in Sydney today with the Redfern Statement members including Congress ( Represented by Rod Little, Gary Oliver and Jackie Huggins ) and the National Aboriginal Community Controlled Health Organisation (NACCHO) represented by Dawn Casey.

Download this document in a PDF

The Redfern Statement – Disability Workshop Statement FPDN FINAL

Then there will be a National Conference at the end of the month

 

FPDN’s vision is a just and inclusive society, in which First Peoples living with disability are respected and valued for their culture, history and contribution to contemporary life, and in which their human rights are recognised, respected, protected and fulfilled. First Peoples Disability Network is governed by Aboriginal and Torres Strait Islander people living with disability. FPDN is a member of the Disabled People’s Organisations Australia (DPO) alliance.

The Redfern Statement

The Redfern Statement was released during last year’s Federal Election campaign on 9 June 2016 by Aboriginal and Torres Strait Islander leaders from health, justice, children and families, disability, and family violence prevention sectors.

The statement calls for changes across these sectors through structured engagement with Aboriginal and Torres Strait Islander people, and is supported by more than 30 major mainstream organisations including the Australian Medical Association and Law Council.

It includes the following recommendations for disability:

1. Work to address intersectional discrimination

2. Equitable access to the NDIS by Aboriginal and Torres Strait Islander people

3. Establish disability access targets as part of the Closing the Gap framework and the NDIS Quality Assurance and Outcomes framework

4. Invest in research and development to build an evidence-base of data

5. Address the imprisonment rates of Aboriginal and Torres Strait Islander people with a cognitive or psychosocial disability

6. Fund training and community leadership initiatives

Introduction

By any measure, Aboriginal and Torres Strait Islander people with disability are among some of the most disadvantaged Australians often facing multiple barriers to their meaningful participation within their own communities and the wider community. Meeting the needs of Aboriginal and Torres Strait Islander people with disability is one the most critical social justice issues in Australia today.

The prevalence of disability among Aboriginal and Torres Islander people is significantly higher than that of the general population.

There is a significant opportunity to address the disadvantage experienced by Aboriginal and Torres Strait Islander people with disability in coming years. The disability sector is going through substantial change and reform, due to the National Disability Strategy (NDS) and the National Disability Insurance Scheme (NDIS) and associated sector reforms.

Aboriginal and Torres Strait Islander People with disability have limited access to services and supports for a range of reasons. A specific strategy targeting the key challenges is required to ensure that the disability support system is accessible and responsive to Aboriginal and Torres Strait Islander people with disability and their families.

This strategy must build the capacity of individuals with disability and their families, and the disability support system. A specific strategy mitigates the risk of entrenching and exacerbating the disadvantage experienced by Aboriginal and Torres Strait Islander people with disability and their families.

This workshop aims to identify and document solutions and to produce a 10-point plan that provides clear recommendations.

Snapshot of Policy Framework

National Disability Strategy

The National Disability Strategy 2010-2020 provides an overarching national policy approach to improving access to support services and social outcomes for people living with disability, their families and carers. It was endorsed by COAG in 2011.

There are six priority areas under the National Disability Strategy:

  • Inclusive and accessible communities – including the physical environment, transport, communications, social and cultural life.
  • Rights protection, justice and legislation – including anti-discrimination, interaction with justice systems
  • Economic security – including employment, income support
  • Personal and community support – including provision of disability support services
  • Learning and skills – including early childhood, education (all levels)
  • Health and wellbeing – access to health, interaction between the health and disability services.

There is an action item under the National Disability Strategy for the development of an Aboriginal and Torres Strait Islander Disability Action Plan, which the Australian Government has been progressing, in consultation with FPDN and other disability organisations, for some time.

Closing the Gap Framework

Historically disability has been inappropriately included as a health issue. The Redfern Statement Leadership has acknowledged the importance of delineating disability from health.

This outdated approach to disability is referred to as the medical model of disability, where the focus is diagnosis.

The contemporary understanding of disability is the social model of disability which interprets disability as a product of social and environmental attitudes and responses to impairment.

‘Disability’ has the status of ‘Headline indicator’ under the Closing the Gap Framework, together with chronic diseases. This means that when there is a section on disability in Government service reports thereis a relatively narrow focus, often upon particular disability types such as the known incidence of psychical and sensory impairments.

There is no Closing the Gap target for disability. This means that there is no concentrated policy focus on Aboriginal and Torres Strait Islander disability, supported by a national partnership agreement.

In 2012, First Peoples Disability Network was invited by the Government to be involved in the development of a Closing the Gap target for disability. A target of 90% of Aboriginal and Torres Strait Islander people eligible for the NDIS to have access to the Scheme was recommended. This is yet to be included in the framework.

NDIS – Aboriginal and Torres Strait Islander Engagement Strategy

The NDIS will provide about 460,000 Australians under the age of 65 with a permanent and significant disability with the reasonable and necessary supports they need to live an ordinary life.

As an insurance scheme, the NDIS takes a lifetime approach, investing in people with disability early to improve their outcomes later in life.

The NDIS helps people with disability to:

Access mainstream services and supports

Access community services and supports

Maintain informal support arrangements

Receive reasonable and necessary funded supports

In late 2015, FPDN and other disability organisations consulted with the NDIA to produce an engagement strategy for the implementation of the NDIS in Aboriginal and Torres Strait Islander communities. This was released in March 2017.

The NDIS Aboriginal and Torres Strait Islander Engagement Strategy document is intended as a guide to NDIA staff on the respectful engagement with Aboriginal and Torres Strait Islander people, particularly on cultural dimensions to understanding disability and respect for ways of doing business in Aboriginal and Torres Strait Islander communities.

It is not a comprehensive integrated strategy to improve access to the NDIS by Aboriginal and Torres Strait Islander people.

Disability and Justice

There have been several Inquiries by both Commonwealth and State and Territory Governments on cognitive disability and mental health in the justice system e.g. Senate Community Affairs References Committee Inquiry into the Indefinite detention of people with cognitive and psychiatric impairment in Australia (2015-2016), Review of the West Australian Criminal Law (Mentally Impaired Accused) Act 1996 (2014-2016), Royal Commission into the Protection and Detention of Children in the Northern Territory (2016-), or Indigenous incarcerations e.g. see Australian

Law Reform Commission inquiry into the incarceration rate of Aboriginal and Torres Strait Islander peoples (2016-).

The limitations of these Inquiries are:

A focus on judicial processes and client support, so the social issues and ‘downstream’ determinants such disability which lead to the poor justice outcomes are outside the scope of such inquiries;

They don’t acknowledge or address the intersectional impact of Aboriginality and disability.

Disability and Health

The National Aboriginal and Torres Strait Islander Health Plan – Implementation Plan contains a linkage objective to disability, without listing any specific activities or initiatives. Recent consultations on the Implementation Plan by the Department of Health do not include disability as a social determinant to Aboriginal and Torres Strait Islander health outcomes.

The National Health Performance Framework contains a very short reference to disability, although there has been no engagement with Health Department from the Aboriginal and Torres Strait Islander disability sector on the content and analysis.

The Foetal Alcohol Spectrum Disorders (FASD) Action Plan focuses on efforts to finalise and disseminate the National FASD Diagnostic Tool, and prevention of FASD.

Disability and Education

The National Aboriginal and Torres Strait Islander Education Strategy, endorsed by Education Ministers in September 2015, has no specific reference or strategies to address to the intersectional impact of disability on education outcomes.

The changing disability sector

The introduction of the National Disability Insurance Scheme (NDIS) has the potential to deliver significant improvements and aims to give people with disability, who qualify for the scheme, access to ‘an ordinary life’.

The national discussion around disability, supports and disability rights that has ensued has highlighted the existing gaps in access to services and supports and infrastructure that many Aboriginal and Torres Strait Islander people face.

Closing these gaps must be part of the rollout of the scheme and the associated sector changes to achieve the equitable rollout of the scheme, and ensure equitable access to services and supports for people not eligible for the scheme.

The following key issues must be strategically addressed:

Information and communication failures

Inability to engage with volition-based models of disability support

Lack of disability supports in remote areas

Lack of cultural competence in mainstream disability support services

Lack of Aboriginal and Torres Strait Islander specific services

Lack of Aboriginal and Torres Strait Islander disability support staff

Responding to these challenges

Without specific community and service development strategies targeted at Aboriginal and Torres Strait Islander population groups and communities, national the disability reforms will do little if anything, to address the aggravated disadvantage of Aboriginal and Torres Strait Islanders with disability and their families.

A national implementation strategy addressed at these challenges is required

This national strategy ought to include at least the following components:

A dedicated, continuing, communication strategy based on direct outreach to Aboriginal and Torres Strait Islanders and their communities utilising culturally sensitive materials and culturally appropriate/competent communication methods.

Active linking of Aboriginal and Torres Strait Islanders with disability and their families with NDIS implementation agencies and services.

Culturally specific individual advocacy support for Aboriginal and Torres Strait Islanders with disability and their families.

Capacity-building of Aboriginal and Torres Strait Islanders with disability and their families in relation to person-centred services and self-directed supports.

Development and dissemination of good practice culturally appropriate models of person centred, self-directed disability support services for Aboriginal and Torres Strait Islanders with disability and their families.

Culturally specific systemic advocacy oversight of NDIS implementation to provide early warning of emerging difficulties and propose solutions;

Sustained cultural competence training and other capacity building for mainstream disability support services in relation to working with Aboriginal and Torres Strait Islanders with disability.

Development and dissemination of good practice culturally appropriate models of remote service delivery.

A recruitment, qualification, professional development, retention and career development strategy targeted at Aboriginal and Torres Strait Islanders entering the disability sector.

Capacity-building of Aboriginal and Torres Strait Islander service delivery organisations to provide disability support services under the NDIS.

It is essential that this proposed national implementation strategy is developed and implemented in close consultation with Aboriginal and Torres Strait Islanders with disability and their families, and with their representative groups.

The establishment of a national advisory structure comprised of appropriate representatives of Aboriginal and Torres Strait Islanders with disability and family members would be one key means of achieving this.

It is also essential that, as far as practicable, this strategy is led and implemented by appropriate Aboriginal and Torres Strait Islander specific organisations, including the First Peoples Disability Network (Australia). This is key to the strategy being viewed as legitimate by Aboriginal and Torres Strait Islanders with disability.

#WeHaveTheSolutions

Four years ago, FPDN launched its ten-point plan for the implementation of the NDIS in Aboriginal and Torres Strait Islander Communities at Parliament House, Canberra.

The time has come to revisit the plan and update it in light of the ongoing rollout of the NDIS and the changing disability sector. The ten-point plan must apply to all First Peoples with disability as many will not be eligible for the NDIS.

 

Aboriginal Health #racism and #cancer #WCPH2017 : The inoperable, unstoppable @Proudblacksista Colleen Lavelle and other strong stories

“People will forget what you said, people will forget what you did,

but people will never forget how you made them feel. – Maya Angelou

These strong words are so true. I look at how my behaviour has changed with the brain tumour. I shudder when I think of the things I have said to my children.

I think it was about eight or nine years ago I was diagnosed with a brain tumour,

The reason I’m vague on it is I actually don’t think it’s a day to remember. It’s not a celebratory day.

Thinking about my four children motivates me to keep going

I’ll be buggered if I am going to have the [child safety] department or someone like that come in and take care of my kids.”

Cancer is a leading cause of death among Indigenous Australians, but fear, stigma and shame mean it is rarely spoken about.

Ms Colleen Lavelle’s a Wakka Wakka woman, from Queenslandknown as @Proudbacksista  tumour has been deemed inoperable, which means it’s considered terminal.

Hear or Download hear her Radio National Interview 

Or

Watch ABC TV report

Photo above from previous NACCHO News Alert

NACCHO Aboriginal Health : Death by #racism: Is bigotry in the health system harming Indigenous patients ?

NACCHO and Cancer over 60 articles

NACCHO Cultural Safety

Federal Government Website

Cancer in Aboriginal and Torres Strait Islander people of Australia

Colleen lives in Brisbane and through her blog she has become a support person for other Aboriginal people facing cancer, helping them with practical matters and being a friendly voice on the other end of a phone line.

She also accompanies some patients to hospital appointments and would like to see it made easier for Aboriginal volunteers to do such work.

“If you come from the Torres Strait and you’ve come down here and someone’s speaking to you really fast, rattling off all these medical things you’ll kind of be going, ‘what?’,” she said.

“If you’ve got someone, one of your own mob there it makes it easier.”

 Recently Colleen wrote for Croakey /We Public Health

Close the Gap should be so much more than a photo opportunity or a morning tea. There are ways that everyone can help. I am going to share ten simple ones that I have been trying to get happening for years.

  1. More Indigenous hospital liaison officers – Whatever title you use, we need more people in the hospital working for us. Big hospitals often only employ two, that is not even close to being enough. They should be employed around the clock.
  2. Indigenous hospital volunteers – Hospitals need to have a separate army of volunteers, who deal exclusively with Indigenous patients, to spend time with the person from a remote area in a city hospital. To sit with someone having a long treatment. Just a friendly face in an alien environment.
  3. Cultural Awareness Training (CAT) – Should be compulsory with all hospital staff, from the cleaner to the director. This training should address the issues and problems in health, but also needs to be localised to have the Traditional Owners from the area to share their knowledge. To truly let people understand, I am not talking a one of two-hour session a year, but a long, fully-formed training, with refresher courses each year. All medical and Allied Health professionals should do, and be assessed on, Cultural Awareness on a regular basis, and this needs to be registered. It is not good enough when a health professional does one course on Indigenous People and 20 years later still think that was enough. General Practice also need to have CAT, even if they are not signed on to CTG, because they are going to be seeing Indigenous patients.
  4. General Practice incentive payments – GPs must lose their incentive payments if they sign on for the incentive and, during that time they don’t see an Indigenous patient. Again, they should lose the bonus if they are signed up and do not annotate the prescriptions for patients.
  5. Indigenous people have the right of choice – We should be able to see a private GP or the local Indigenous Medical Service, or both if we want, but some funding seems to steer us towards the Indigenous Medical Service. This can be hard if it’s a long way from your home and you have to depend on public transport.
  6. Employ more Indigenous people in the health sector, not just  doctors – It can be as simple as a receptionist, who makes a difference.
  7. Indigenous patients must be heard – Not just in the surgery but on national committees. Our experiences must be more than just fodder for researchers or funding applications.
  8. Buck-passing – PHNs, Division of General Practices and other organisations, must stop handing over Indigenous units to others. You have patients that see so many doctors, you have to be responsible. Handing units over to Indigenous Medical Services etc, is passing the buck. It takes away our free choice. It is a way of saying you are not interested in our wellbeing.
  9. Respect – Invite Elders to your hospital, clinic, whatever, on a regular basis, consider having an Elder in residence at your local hospital.
  10. Recognise and celebrate our important dates – It smacks of racism if a hospital is decked out in green and shamrocks everywhere for St Patrick’s day and come NAIDOC, there is a morning tea, hidden away, with only a few people involved. Share it. Don’t even get me started on Australia Day. (Okay, just a little bit) Understand that we don’t think it’s great to wave the flag or want to be in your premises when you have complete overkill of decorations and start talking about how wonderful it is.

The unspoken illness: Cancer in Aboriginal communities

Cancer is a leading cause of death among Indigenous Australians, but fear, stigma and shame mean it is rarely spoken about.

Aboriginal Australians are less likely to be diagnosed with cancer, but significantly more likely to die of the disease.

Often, symptoms and diagnoses are ignored because of the fear surrounding cancer.

Cancer in Aboriginal communities:

  • Indigenous Australians have a slightly lower rate of cancer diagnosis than non-Indigenous Australians
  • The Aboriginal cancer mortality rate is 30 per cent higher
  • Indigenous Australians are more likely to be diagnosed when cancer is advanced
  • They are less likely to participate in cancer screening programs
  • Lung cancer is the most common cancer among Indigenous Australians

Lateline spoke to some Aboriginal people about how they dealt being diagnosed and how they’re trying to break down taboos in their communities.

Rodney Graham: Bowel cancer

Rodney

Rodney Graham literally ran away from his diagnosis in 2015.

For seven months he didn’t go back to his doctor after he was told he had bowel cancer.

Eventually though, he mustered the courage to deal with the diagnosis and get treatment.

He had to travel 700 kilometres from his community of Woorabinda, in central Queensland, to Brisbane to be operated on.

“A big city like that, I don’t even like going to [Rockhampton] really. I can’t stand Rocky. But Brisbane that was a step up you know,” he said.

Now Mr Graham is happy to talk about his illness and wants to help others in his community face up to cancer.

“It might happen to someone else and they say, ‘Well we’ll go see Rodney, he knows all about it’,” he said.

“I’ll give them some advice and see how it goes from there.”

Mr Graham gave up drinking years ago and he said it probably saved his life.

“I think if I was still drinking I wouldn’t be here, you know what I mean,” he said.

Aunty Tina Rankin: Cervical cancer

Aunty Tina has survived cancer, but seen several close relatives succumb to the disease.

“One minute you’re sitting down there with that person, that person is so healthy, and then the next time you see them they’re that sick, they’re that small you can hardly recognise them,” she said.

“People think of it as the killer disease.

“They see people in cancer wards and to look at those people it puts them into a depressed state, and they go home thinking that they’re going to end up like that.”

Aunty Tina said people need to know there is help available for cancer sufferers.

She is part of the Woorabinda Women’s Group who are working to raise awareness in the community about cancer so sufferers don’t feel isolated.

“When you’re well and up and running, you’ve got that many friends,” she said.

“All of a sudden you get sick, you find out you’ve got cancer, you’ve got nobody, it feels as if you’re on your own.

“There were times when I just wanted to go and commit suicide through the depression.

“But I sit down and think about things, I pull myself out of that deep hole.”

Sevese Isaro: Lost his father to cancer

Sevese Isaro, or Tatay as he’s known locally, is Woorabinda’s radio host.

He knows first-hand how hard it can be to talk about cancer, having lost his father to the disease just a few years ago.

“Everyone just tried to stop talking about it,” he said.

“I fell back into drinking, everybody just went their own way.”

He said many people don’t go to the doctor when they suspect they could have cancer.

“They know that there’s something wrong with them, but they don’t want to go because they’re frightened of the answer,” he said.

“I guess people once they hear the word cancer they start getting frightened and they automatically give up hope.”

If you or anyone you know needs help contact your local ACCHO or call

NACCHO Aboriginal Health #disability and @NDIS : Your Top 10 Questions answered about the National Disability Insurance Scheme

What is the NDIS?

Will the NDIS mean more or less support?

Is the NDIS diagnosis based or needs based?

Am I eligible for the NDIS?

Where is the NDIS available now?

What supports does the NDIS cover?

How does the NDIS process work?

I have an NDIS plan. What’s next?

When will the NDIS be here for all Australians?

Where can we get more help

Full details below or download Help Guide Here :

NDIS your Questions answered Download

By any measure Aboriginal and Torres Strait Islander people with disabilities are some of the most disadvantaged Australians, often facing multiple barriers to their meaningful participation within their own communities and the wider community.

The prevalence of disability amongst Aboriginal and Torres Strait Islanders is significantly higher than the general population. The Productivity Commission’s Overcoming Indigenous Disadvantage Report released mid- November 2014, highlighted that almost half of the Aboriginal and Torres Strait Islander population have some form of disability or long term health condition, twice the prevalence of disability experienced by other Australians.

The First Peoples Disability Network (FPDN) welcomes the implementation of the National Disability Insurance Scheme and recognises its huge potential to provide Aboriginal and Torres Strait Islander people greater access to disability support “

Damian Griffis is the CEO of the First Peoples Disability Network, an national organisation of and for Aboriginal and Torres Strait Islander people, families and communities with lived experience of disability.

Ten-point plan for the implementation of the NDIS in Aboriginal and Torres Strait Islander Communities HERE

See full article here or 2 below

  ” The National Disability Insurance Scheme (NDIS) is the most significant policy reform for people with a disability since the Disability Services Act 1986 (DSA). The NDIS has proven potential to enable people with disabilities to live good lives.

The National Disability Insurance Agency (NDIA) reports that around 5% of NDIS participants are of Indigenous heritage.

The NDIA has branded the new scheme as a way of expanding individual and family choice in the services and supports people with disabilities can access. As we have noted previously, individual ‘choice’ requires ‘opportunities’ to exist in local communities. The more remote or rural a community the fewer opportunities available. As such, limited ‘opportunities’ in communities lead to limited ‘choice’ for Indigenous people with disability on NDIS plans who live in rural or remote communities.”

Dr John Gilroy and Associate Professor Jennifer Smith-Merry’s 

Originally published in Croakey  see full article 1 below

Dr John Gilroy is a Koori man from the Yuin Nation, and a doctor of sociology in Indigenous health, specialising in disability studies.

Every Australian Counts

NDIS: Your Questions Answered

The NDIS was launched in trial sites on 1 July 2013. The Scheme is being progressively rolled out over the next few years across Australia. In each State or Territory, the roll out will be staged to ensure the transition is as smooth as possible. Everyone who needs the NDIS will have access by 2020.

Download the Every Australian Counts NDIS: Your Questions Answered

NDIS your Questions answered Download

Endeavour Foundation Discover. This guide has been developed for individuals, families and people with an intellectual disability who are about to navigate the National Disability Insurance Scheme (NDIS).Note not an NDIS publication

NDIS 168 Page

What is the NDIS?

The existing disability system throughout Australia is inefficient, fragmented, unfair, underfunded and leaves most people with disability without the support they need. Plus, people with disability and their families don’t get enough say in the type of supports they receive.

The NDIS stands for the National Disability Insurance Scheme. It’s a new government policy that aims to transform the way Australia supports people with permanent and significant disability.

The foundations of the NDIS are built on two key pillars:

It’s a universal system. The NDIS is a national program similar to Medicare. It will provide supports to all eligible Australians ensuring people with disability and their families get the support they need when they need it.

It’s about more choice and control. The NDIS is based on the idea that people with disability and their families should be empowered to set their own goals and choose their own supports. This is achieved by giving them control over their own support budget.

Will the NDIS mean more or less support?

Under the existing disability system around 220,000 Australians receive funded disability supports. Under the NDIS approximately 460,000 people will receive funded supports, and the average support package will almost double from $18,000 to $35,000.

The NDIS is about making sure you have the right support in the right place at the right time to help you participate in the community and economy. If your needs change over time, you can have your plan reviewed and level of support adjusted. You will have complete choice and control over what’s in your plan and who provides your supports so you can make the most of your package.

Is the NDIS diagnosis based or needs based?

Needs based. The NDIS does not have a list of conditions that automatically include or exclude you from support. It’s based on what you need to live a full life, and how much your disability affects your ability to carry out everyday activities. In the case of children, it’s about whether a disability is likely to be permanent or result in a developmental delay.

This is a big change from the existing system where children without a diagnosis often miss out on funding or their parents are forced to lie about their disability to get support.

Am I eligible for the NDIS?

To access the NDIS you must:

have a significant and permanent disability – this includes people with psychosocial disability

be an Australian citizen, permanent resident or a New Zealand citizen on a Protected Special Category Visa

enter the Scheme before you turn 65.

If you’re unsure whether you meet the above criteria, a good yardstick is if you’re currently receiving funded support, you can expect to be eligible for the NDIS. For individuals who may benefit from early intervention, the eligibility criteria to access the NDIS is more flexible.

Where is the NDIS available now?

The NDIS is being introduced in stages throughout Australia. Existing service users and new participants will enter the scheme progressively. Full scheme transition began in July 2016 in many parts of Australia. There’s still a few more years until it will be here for everyone. The best way to find out when the NDIS is coming to you is by visiting the government’s website: www.ndis.gov.au

As the NDIS rolls out, local offices will open. Here are the current office locations:

Australian Capital Territory

Offices in:

Belconnen, Braddon, Tuggeranong and Woden

New South Wales

Offices in:

Bankstown, Batemans Bay, Bega, Blacktown, Campbelltown, Charlestown, Chatswood, Gosford, Katoomba, Liverpool, Maitland, Moree, Newcastle, Parramatta, Penrith, Tamworth, Taree and Windsor.

Northern Territory

Office in:

Tennant Creek

Queensland

Charters Towers, Palm Island and Townsville

South Australia

Offices in:

Elizabeth, Modbury, Murray Bridge, Noarlunga, Port Adelaide and St Marys

Tasmania

Offices in:

Devonport, Hobart and Launceston

Victoria

Offices in:

Colac, Corio, Darebin, Geelong and Greensborough

Western Australia

Midland

What supports does the NDIS cover?

The types of supports you might get include therapies such as physiotherapy, mobility and technological aids and home modifications.

And it’s not just about covering the ‘essentials’ – your plan could include things such as recreational activities, developing skills like shopping or cooking and help with finding a job. No two people are exactly the same, so neither are the supports in their plan. The NDIS is about you living the life you want – not just getting by.

Some of the supports the NDIS will cover include:

Transport assistance

Therapies

Guide & assistance dogs

Case management

Crisis/emergency support

Personal care

Support for community inclusion

Respite

Specialist employment services

Specialist housing support

Domestic assistance

Aids, equipment, home & vehicle modifications

How does the NDIS process work?

Step one to accessing the NDIS is to find out if you are eligible. Remember, under the new system more people with disability will receive funded supports than ever before. If you are already using disability services and supports you will be contacted by the NDIS or a representative when it’s time to transition. Others may need to present proof of disability such as a statement from your doctor explaining your disability and how it affects your life. The Access checklist on the NDIS website is a good place to start; http://www.myplace.ndis.gov.au/ndisstorefront/ndis-access-checklist

Step two is to start the planning process by talking to the NDIS or one of their representatives. The idea is to talk through your support needs and goals together and come up with the best ways that are reasonable and necessary to meet these goals. And you don’t have to do it alone – you can invite a family member or friend or support worker to come along too. Together with the planner you will develop a support package.

Every Australian Counts tip: Think about your planning meeting as the chance to get the most out of your NDIS support package – the more time you spend preparing, the better your plan will be. So before your meeting, think about what you’ll need to live the life you want. It can also be helpful to chat to your family and carers about what’s missing in your current supports, activities and plans.

I have an NDIS plan. What’s next?

At your NDIS planning meetings you will come up with how to put your plan into action. Most importantly, that means coming up with the supports and services you need to live your life to the full.

This means that for the first time ever, you can decide exactly where your supports come from. This can be through the service providers you’re using now, finding completely new ones, or even self-managing your supports – it’s completely up to you!

If you disagree with an NDIS assessment or are unhappy with your support package, you have the right to ask for a review from the NDIS. You also have the right to get an advocate, friend or independent representative to help you out in this process.

Every Australian Counts tip: The NDIS was set up to give you the power to choose your own supports and service providers. You can do your own research or get help from advice and advocacy organisations. It can also be useful to talk to other people with disability, family members or carers about what works or doesn’t work for them. Remember, your plan is not a one-off decision. If or when your needs change, so can your plan.

When will the NDIS be here for all Australians?

The NDIS will be here for all Australians who need it (460,000 people) no later than 30 June 2019. Rollout information and timetables can be found online: www.ndis.gov.au

Ten ways the NDIS will benefit all Australians.

It’s a national system. If you, or someone you love, is born with a disability or acquires one later in life, you all no longer run the risk of falling through holes in Australia’s safety net based on what state or territory you live in.

People with a disability and their families and carers can participate in the social, economic, and cultural life of the nation with the supports and programs they choose.

Families will be able to access support and services for assistance in meeting the needs of their family member with a disability, reducing physical, emotional and financial stress.

The NDIS is based on equality. You will be able to equally access existing services regardless of when and where your disability was acquired.

There will no longer be an expectation of unpaid care as the norm.

As a Medicare-type system, the NDIS will provide people with a disability and their families and carers with the regular care, support, therapy and equipment they need from a secure and consistent pool of funds for these services and support.

It focuses on early intervention and delivering supports which produce the best long term outcomes, maximising opportunities for independence, participation and productivity.

Each NDIS plan is individualised and person-centred. Support is based on the choices of the person with a disability and their family.

The NDIS is fiscally responsible. It is not welfare but an investment in individual capacity leading to more positive results for people with a disability, their families and carers.

All Australians benefit from the NDIS because disability can affect anyone, anytime. Everyone will benefit from a more inclusive, more diverse community. Every Australian Counts will keep you up to date with all the NDIS news, information, stories and experience on our website; everyaustraliancounts.com.au

Where can I find out more?

For Aboriginal and Torres Strait Islanders

http://fpdn.org.au/

For everybody

www.everyaustraliancounts.com.au

The Every Australian Counts website is an online hub for the disability community that’s packed with useful information, videos and news.

www.ndis.gov.au

The official NDIS website includes an access checklist, factsheets and information to help prepare you for the NDIS.

For people with disability

www.afdo.org.au

The Australian Federation of Disability Organisations (AFDO) represents people with disability. They can connect you with advocacy support.

For carers

www.carersaustralia.com.au

Carers Australia is the national peak body representing carers. Through their website you can access carer support and services.

For disability support workers

www.ndp.org.au

Proposed Aboriginal Community Controlled Health Organisation NDIS Network

Localised, community-based services from John Gilroy article

Research shows that Aboriginal community controlled organisations are an essential component of addressing the health and social needs of Indigenous communities. In a recent review of existing community-based mental health services, Jen Smith-Merry found that the services offered for Indigenous people were most successful when developed by local communities or ‘localised’ and adapted carefully (and genuinely) to community needs.

John Gilroy’s research shows the important role of Indigenous community controlled organisations in forming relationships and referral pathways to disability services. These organisations function as the “social glue” between Indigenous communities, and disability and community organisations.

Expressions of Interest

Joe Archibald the NDIS Manager at Galambila ACCHO at Coffs Harbour is looking to establish a network of ACCHO NDIS health workers :

Express interest in this group EMAIL JOE HERE

Contact

NDIS must promote and support community-based programs to meet Indigenous people’s needs.

Dr John Gilroy and Dr Jennifer Smith-Merry write:

The National Disability Insurance Scheme (NDIS) is the most significant policy reform for people with a disability since the Disability Services Act 1986 (DSA). The NDIS has proven potential to enable people with disabilities to live good lives.

The National Disability Insurance Agency (NDIA) reports that around 5% of NDIS participants are of Indigenous heritage.

The NDIA has branded the new scheme as a way of expanding individual and family choice in the services and supports people with disabilities can access. As we have noted previously, individual ‘choice’ requires ‘opportunities’ to exist in local communities. The more remote or rural a community the fewer opportunities available. As such, limited ‘opportunities’ in communities lead to limited ‘choice’ for Indigenous people with disability on NDIS plans who live in rural or remote communities.

Services, supports and capacity building

The original inquiry into the NDIS identified the importance of a balance between an individualised support system and the block-funding of services and programs to ensure efficient and effective roll-out of the NDIS. The work that we have been involved in supports this view, arguing that Indigenous people should be able to utilise services at their own pace that meet their cultural and personal needs rather than being pushed through a government imposed time-frame.

The government has released the policy framework for NDIS Information, Linkages and Capacity Building (ILC), and the subsequent Commissioning Framework. The ILC, formally Tier 2 of the NDIS, provides funding for the development of programs to help connect people with the disability, health and social supports, and services that are appropriate for them. It also supports capacity building for communities, organisations and individuals, that is not tied to a person’s individualised funding package. In doing this, it aims to also offer support for those who are not eligible for individualised funding packages.

Ensuring equal access and resourcing

There is growing concern that services for the most disadvantaged of the population of people with disabilities may become under-resourced or absent in light of the NDIS roll-out. There is much evidence that this disadvantage is heightened by geographic location, such as very remote communities. The ILC has been designed to provide the opportunity for the needs of these groups to be better met, but only if there is a proactive prioritisation of their needs.

Informed by several of our existing research and community projects, below we present some recommendations for the government, regarding the types of block-funded programs and services needed in local Indigenous communities to ensure that they benefit from the NDIS roll-out.

We preface these recommendations with the observation that there is a big problem with the implementation of the ILC, as the funding has been severely curtailed in its first stages. Bruce Bonyhady, former chair of the NDIS, warns that the current funding for community inclusion programs is: “not sufficient and means that one of the key foundations on which the NDIS is being built is weak”. This funding gap needs to be addressed immediately as there will be significant benefit to indigenous communities if the funding targets appropriate areas.

Crisis Intervention Services

Disability services providers have reported that many Indigenous people engage in the formal services system only when the quality or quantity of family and kinship care is depleted. As such, a large proportion of Indigenous people engage in the disability services sector when in a crisis situation.

Crisis services should be made more disability inclusive, and should act as a channel for encouraging the utilisation of appropriate individualised funding package supports. Targeted capacity building programs are also needed, to enable families and kinship groups to provide support. Such programs should be individualised and culturally and contextually appropriate. Block-funded models enable organisations that have established rapport with communities, to deliver such services in a culturally appropriate manner.

Transition support services

While many Indigenous people only engage with services at times of crisis, the impact of the services provided during crises can be sustained as the crisis abates. The most effective way of doing this is by supporting individualised transition support services which help people to re-establish their lives. This could involve connecting people with appropriate individualised support packages or funding of ‘peer support’ or community buddy programs.

Case Management and advocacy services.

Some bureaucrats wrongly use the terms “case management” and “advocacy” synonymously. The major difference between these two service types is that formal advocates are called upon when a person feels that their human rights have been violated. In comparison, case managers are typically called upon to assist people to join up services and supports by navigating the complex bureaucracy of the formal service systems, including health and disability.

It is pivotal to have a balance of these two service types under the NDIS to enable people with disabilities access to supports that foster the protection of their human rights and enable them to navigate the NDIS bureaucracy.

Early Childhood Intervention

There is limited research focused on the needs of Indigenous children with disability. A recent study found that young children with cognitive impairment are at risk of social exclusion, and need interventions to promote inclusion in family and cultural events as they age.

The government has identified early childhood intervention (ECI) as an area for block-funding investment, in recognition that the market-based principles of the NDIS could not work for this service type. ILC block funding can be used for early intervention and allows novel or creative community-based solutions to develop. This will allow the development of services which may meet local needs but are not ‘standard’ service types. Evidence-based practice is great if the evidence is there, but it should not be a straight-jacket, limiting what is possible.

Localised, community-based services

Research shows that Aboriginal community controlled organisations are an essential component of addressing the health and social needs of Indigenous communities. In a recent review of existing community-based mental health services, Jen Smith-Merry found that the services offered for Indigenous people were most successful when developed by local communities or ‘localised’ and adapted carefully (and genuinely) to community needs.

John Gilroy’s research shows the important role of Indigenous community controlled organisations in forming relationships and referral pathways to disability services. These organisations function as the “social glue” between Indigenous communities, and disability and community organisations.

Workforce Training and Development

The efficiency and effectiveness of the NDIS requires a healthy, vibrant workforce. There are many reports examining what the disability services workforce looks like. However, the roll out of the NDIS will completely reshape the workforce.

National Disability Services are managing a workforce development fund to explore ways to build a workforce that can sustain the NDIS. NDS will need to explore ways to build the number and proportion of Indigenous people working in the sector and also explore successful ways to build a workforce that is culturally competent in supporting Indigenous people and their families.

The CEO of First Peoples Disability Network, Damian Griffis, told ABC Lateline in 2015 that Indigenous people are already working as informal disability workers, stating “There are a lot of Indigenous people that by any other definition would be called support workers today, but they need to be valued and respected for that work and they are already in existence.”

Research shows that over 10% of Indigenous people have provided unpaid assistance to a person with a disability. Agencies could pilot approaches to recruit and train family members that balance people’s human rights with individual duty-of-care in the context of the NDIS.

Translation and Interpreter Services

There are many regions of Australia where the English is a second or third language. Notwithstanding that, there are many Indigenous peoples who require hearing or communication supports. Interpreter and translation services are under-resourced and in high need across the country. It would be discriminatory for NDIS users to have to use their packages to access these service types as this would deplete the funding available for other services in comparison with other NDIS participants. These services should instead be funded at a community level either through the ILC or a specialised program.

Foster Social and Cultural Capital Building

There exists plethora of research showing the important role played by Indigenous community controlled organisations in the health and community services sector. Such organisations provide the opportunities needed to bring together Indigenous people with disability to have their voices heard as a collective. For example, the many NDIS specific gatherings around Australia have brought together Indigenous people with disability to share their stories and experiences. This knowledge should be valued and harnessed. One way that this could take place is through ILC funding of community-based peer-support programs.

The roll out of the NDIS has enabled Indigenous community controlled organisations and services to continue working in local communities. Such organisations and services are being supported to provide services and supports under the NDIS in NSW. Block-funding will enable Aboriginal community controlled organisations to continue their role in representing their communities whilst supporting NDIS participants.

Interagency Networks and Engagement

Jen Smith-Merry’s Research to Action Guide produced for the Centre for Applied Disability Research showed that interagency forums do help with linking across organisations and sectors, but that this is most effective when it happens organically and collaboratively rather than being mandated. Through sharing stories and good practice, interagency forums help disparate actors to understand the different practices and knowledges operating in sectors outside of their own.

 There is evidence of a conflict at the interface of the formal service system and Indigenous communities in how disability is defined and conceptualised. A recent report concluded that many Indigenous people find the definition of disability to be stigmatising. Rather than trying to ascertain how Indigenous peoples define disability, the focus of scholarly exploration should be on ways to bridge the cultural interface in how disability is defined and embodied as a social construct.

Great work has been undertaken by National Disability Services, to foster relationship building between the disability services sector and local Indigenous programs, by implementing the principles of interagency commissioning. Sadly, the government did not extend the funding for these networks to continue. This is a significant problem that won’t be immediately fixed by an underfunded ILC.

A healthy balance

The NDIS is a huge win for the disability rights movement. The new scheme provides an opportunity to address the equality and equity gaps between Indigenous and non-Indigenous people with disabilities. However, there needs to be a balance between block-funding and the individualised packages provided by the NDIS, so that the scheme can meet its full potential. The examples given here provide some ideas for how ILC funding might work, but only dialogue with consumers and communities will point us truly in the right direction.

*Dr John Gilroy is a Koori man from the Yuin Nation, and a doctor of sociology in Indigenous health, specialising in disability studies. He is a Senior Lecturer and Indigenous Stream Lead at the Centre for Disability Research and Policy, University of Sydney

*Associate Professor Jennifer Smith-Merry’s research focuses on the implementation of policy in service settings, and consumer experiences of this. She is Mental Health Stream Lead at the Centre for Disability Research and Policy, The University of Sydney.

Ten-point plan for the implementation of the NDIS in Aboriginal and Torres Strait Islander Communities

Introduction

By any measure Aboriginal and Torres Strait Islander people with disability are amongst some of the most disadvantaged Australians; often facing multiple barriers to meaningful participation within their own communities and the wider community.

The prevalence of disability amongst Aboriginal and Torres Islander people is significantly higher than of the general population. Until recently, the prevalence of disability in Aboriginal and Torres Strait Islander communities has only been anecdotally reported. However, a report by the Commonwealth Steering Committee for the Review of Government Service Provision made the following conclusions:

The proportion of the indigenous population 15 years and over, reporting a disability or long-term health condition was 37 per cent (102 900 people). The proportions were similar in remote and non-remote areas. This measure of disability does not specifically include people with a psychological disability. [note 1]

The high prevalence of disability, approximately twice that of the non-indigenous population, occurs in Aboriginal and Torres Strait Islander communities for a range of social reasons, including poor health care, poor nutrition, exposure to violence and psychological trauma (e.g. arising from removal from family and community) and substance abuse, as well as the breakdown of traditional community structures in some areas. Aboriginal people with disability are significantly over-represented on a population group basis among homeless people, in the criminal and juvenile justice systems[note 2], and in the care and protection system (both as parents and children).[note 3]

The advent of the National Disability Insurance Scheme (NDIS) presents an opportunity for Aboriginal and Torres Strait Islander people with disabilities to engage – many for the first time – with the disability service system in a substantive way. Currently, most Aboriginal and Torres Strait Islander people with disabilities remain at the periphery of the disability service system. This continues to occur for a range of reasons some of which are well established. However, one factor that remains little understood is the reluctance of Aboriginal and Torres Strait Islander people with disabilities to identify as people with disability. This preference to not identify presents a fundamental barrier for the successful implementation of the NDIS. The First Peoples Disability Network (Australia) (FPDN) argues that it has a central role in addressing not only this fundamental barrier but also in facilitating the roll out of the NDIS more broadly into Aboriginal and Torres Strait Islander communities.

FPDN argues passionately that for positive change to happen in the lives of Aboriginal and Torres Strait Islander people with disability, the change must be driven by community itself. It cannot be imposed, implied, intervened or developed with well-meaning intention from an external service system that the vast majority of Aboriginal and Torres Strait Islander people with disabilities have little or no experience of in the first place.

Throughout many communities across the country, Aboriginal and Torres Strait Islander people with disability are supported and accepted as members of their communities. However, many communities lack the resources to adequately support people with disability. Furthermore, the service system tends to operate from a ‘doing for’ as opposed to ‘doing with’ approach, which only further disenfranchises communities because they simply do not feel that they can self-direct their future. The NDIS does have the potential to address some of these concerns by giving Aboriginal and Torres Strait Islander people with disability the opportunity to self-direct their funding, for instance. The challenge in this area will be that many Aboriginal and Torres Strait Islander people with disability have had little or no experience in self-managing funds.

It must be remembered that in many ways the social movement of Aboriginal and Torres Strait Islander people with disability is starting from an absolute baseline position. This is reflected, for example, by the fact that few Aboriginal and Torres Strait Islander people with disability have an understanding of the language of the disability service system. It is the view of FPDN that the application of the NDIS in Aboriginal and Torres Strait Islander communities will need to have a different look and approach to what is advocated for with regard the rest of the Australian population. It may be that the application of the NDIS in Aboriginal and Torres Strait Islander communities takes a longer process. But the FPDN argues that it is critical to get it right as it is the experience of many Aboriginal and Torres Strait Islander people that they are usually the first to be blamed when new programs are not taken up by Aboriginal and Torres Strait Islander people.

FPDN has developed a 10-point plan for the implementation of the NDIS in Aboriginal and Torres Strait Islander people with disabilities. The development of this 10 point plan is based upon extensive consultation as well as drawing upon the decade long experience of the FPDN in advocating for the rights of Aboriginal and Torres Strait Islanders people with disabilities.

The plan was launched in May 2013 at Parliament House, Canberra.

Ten-point plan

  • Recognise that the starting point is the vast majority of Aboriginal people with disability do not self-identify as people with disability. This occurs for a range of reasons including the fact that in traditional languages there are no comparable words for disability. Also, many Aboriginal people with disability are reluctant to take on the label of disability; particularly when they already experience discrimination based on their Aboriginality. In many ways disability is a new conversation in many communities. In these instances the NDIS is starting from a baseline position. As a consequence change in this area is likely to happen on a different timeline to that of the mainstream NDIS.
  • Awareness raising via a concerted outreach approach informing Aboriginal and Torres Strait Islander people with disability, their families and communities about their rights and entitlements, and informing Aboriginal and Torres Strait communities about the NDIS itself and how to work this new system effectively. There is no better way to raise awareness then by direct face-to-face consultation. Brochures and pamphlets will not be appropriate as this is a new conversation in many communities.
  • Establish the NDIS Expert Working Group on Aboriginal and Torres Strait Islander People with disability and the NDIS. In recognition of the fact that there is a stand-alone building block for the NDIS focused upon Aboriginal and Torres Strait Islander people with disability, FPDN views it not only as critical but logical that a specific Expert Working Group be established to focus on Aboriginal and Torres Strait Islander people with disability. The new working group would operate in the same way the four current working groups do, that is it would be chaired by two members of the National People with Disability and Carers Council. To ensure its effectiveness but also critically to influence prominent Aboriginal leaders as well as the disability sector, members would be drawn from Aboriginal and Torres Strait Islander people in community leadership positions, as well as involving prominent disability leaders. The FPDN believes such an approach is warranted not only because of the degree of unmet need that is well established but also because this has the potential to be a very practical and meaningful partnership between government, the non-government sector, and Aboriginal and Torres Strait Islander communities.
  • Build the capacity of the non-Indigenous disability service system to meet the needs of Aboriginal people with disability in a culturally appropriate way. Legislate an additional standard into the Disability Services Act focused upon culturally appropriate service delivery and require disability services to demonstrate their cultural competencies.
  • Conduct research on the prevalence of disability and a range other relevant matters. Critically, this work must be undertaken in partnership with Aboriginal and Torres Strait Islander people with disability to ensure a culturally appropriate methodology. There remains very little reference material about disability in Aboriginal and Torres Strait Islander communities. This needs to be rectified to ensure that we are getting a true picture of the lived experience of Aboriginal and Torres Strait Islander people with disability.
  • Recognise that  a workforce already exists in many Aboriginal and Torres Strait Islander communities that does important work, often informally. This work needs to valued and recognised, with the potential for employment opportunities in some communities.
  • Recognise that it’s not always about services. Many communities just need more resources so that they can continue to meet the needs of their own people with disabilities. There may be perfectly appropriate ways of supporting people already in place, however what is often lacking is access to current technologies or appropriate technical aids or sufficient training for family and community members to provide the optimum level of support.
  • Recruitment of more Aboriginal and Torres Strait Islander people into the disability service sector.
  • Build the capacity of the social movement of Aboriginal and Torres Strait Islanders with disability by supporting existing networks and building new ones in addition to fostering Aboriginal and Torres Strait Islander leaders with disability. These networks play a critical role in breaking down stigma that may exist in some communities but are also the conduits for change, and will be integral to the successful implementation of the NDIS in Aboriginal and Torres Strait Islander communities.
  • Aboriginal and Torres Strait Islander ‘Launch’ sites focused upon remote, very remote, regional and urban settings. It is critical that this major reform be done right. Therefore it is appropriate to effectively trial its implementation. To this end, FPDN can readily identify key communities that would be appropriate as trial sites.

 

 

Aboriginal Health Events / Workshops #SaveADate : #NDIS ,#Disability #Leadership, #Rural, #Kidneys , #RHD, #Ears

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February – May   : NEW : Get NDIS Ready with a Roadshow NSW Launched

2 March  : Disability research within Aboriginal communities : Alice Springs

3 March: AMSANT: APONT Innovating to Succeed Forum – Alice Springs

3 March : The National Indigenous Youth Parliament (NIYP) applications close

5 March: Kidney Health Week Starts

14 March : Western Sydney : Aboriginal Health Services Community Forum –  Rooty Hill NSW

16 March: National Close the Gap Day

16 March Close the Gap Day VISION 2020

22 March: 2017 Indigenous Ear Health Workshop  Adelaide

29 March: RHD Australia Education Workshop Adelaide SA

26- 29 April The 14 th National Rural Health Conference Cairns

29 April:14th World Rural Health Conference Cairns

10 May: National Indigenous Human Rights Awards

26 May :National Sorry day 2017

2-9 July NAIDOC WEEK

If you have a Conference, Workshop or event and wish to share and promote contact

Colin Cowell NACCHO Media Mobile 0401 331 251

Send to NACCHO Media mailto:nacchonews@naccho.org.au

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February – May   : Get NDIS Ready with a Roadshow NSW Launched

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The Every Australian Counts team will be hitting the road from March – May presenting NDIS information forums in the NSW regional areas where the NDIS will be rolling out from July.

We’ll be covering topics including:

  • What the NDIS is, why we need it and what it means for you
  • The changes that the NDIS brings and how they will benefit you
  • How to access the NDIS and get the most out of it

These free forums are designed for people with disability, their families and carers, people working in the disability sector and anyone else interested in all things NDIS.

Please register for tickets and notify the team about any access requirements you need assistance with. All the venues are wheelchair accessible and Auslan interpreters can be available if required. Please specify any special requests at the time of booking.

Find the team in the following locations: 

Click on a link above to register online now! 

Every Australian Counts is the campaign that brought about the introduction of the National Disability Insurance Scheme.

Now it is a reality, the team are focused on engaging and educating the disability sector and wider Australian community about the benefits of the NDIS and the options and possibilities that it brings.

 2 March  : Disability research within Aboriginal communities : Alice Springs

Dr John Gilroy, a Koori man from the Yuin Nation of the the South Coast of New South Wales, will be presenting a seminar on disability research in Aboriginal communities in the Rubuntja Building, at the Alice Springs Hospital, Northern Territory (NT), on Thursday 2 March 2017 from 12pm – 1pm.

John, a senior lecturer at the University of Sydney (USYD) and a member of the Poche research family will present his journey from being a client of disability services to becoming one of the leading scholars in disability research within Aboriginal communities. His discussion will touch on disability research and scholarship undertaken with Aboriginal people and its implications for the National Disability Insurance Scheme, including the current disability research projects underway with the Anangu of the Ngaanyatjarra Pitjantjatjara Yankunytjatjara (NPY) lands

There are limited seats and registration is required, so book by email using contact below.

Contacts

Poche Centre for Indigenous Health and Well-being
Ph: (08) 8951 9601
Email:

3 March : The National Indigenous Youth Parliament (NIYP) applications close

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Is your chance to come to Canberra, meet Australia’s leaders, learn about democracy and have your say on important issues. Fifty young Aboriginal and/or Torres Strait Islander people will be selected, six from each state and territory and two from the Torres Strait, to come to Canberra for the week-long program

Aboriginal and/or Torres Strait Islander people aged 16 to 25 years who are willing to stand up and speak about important issues, work as part of a team, travel to new places, meet new people and learn.

How do I apply?

Complete and submit the online application form below. Applications close Friday 3 March 2017.

Please contact us if you do not receive an email confirmation of your application within 3 days. The AEC accepts no responsibility for lost, damaged or late applications.

All information you provide in your application is managed and stored appropriately in accordance with the Privacy Act 1988.

Letter of support

All applications must include a letter of support from your teacher or tutor, employer, coach, youth worker, community leader, family friend or other referee. The letter of support should support the claims made in your application and explain why you are suitable for the NIYP.

Tips for completing this form

  • Write your answers on a document saved to your computer first in case your connection is lost.
  • Have a scanned copy of your letter of support ready to upload with your application.
  • Contact us if you don’t receive an email confirmation within 3 days of submitting this form to make sure we received it.
Apply online now

3 March: AMSANT: APONT Innovating to Succeed Forum – Alice Springs

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Following our successful 2015 AGMP Forum we are pleased to announce the second AGMP Forum will be held at the Alice Springs Convention Centre on 3 March from 9 am to 5 pm. The forum is a free catered event open to senior managers and board members of all Aboriginal organisations across the NT.

Download the Program

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Come along to hear from NT Aboriginal organisations about innovative approaches to strengthen your activities and businesses, be more sustainable and self-determine your success. The forum will be opened by the Chief Minister and there will be opportunities for Q&A discussions with Commonwealth and Northern Territory government representatives.

To register to attend please complete the online registration form, or contact Wes Miller on 8944 6626, Kate Muir on 8959 4623, or email info@agmp.org.au.

5 March: Kidney Health week

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is nearly here! Learn how you can get involved this 5-11 March, and order your free event pack:

14 March : Western Sydney : Aboriginal Health Services Community Forum –  Rooty Hill NSW

WACHS invites Aboriginal community representatives from Western Sydney and the Nepean Blue Mountains region to meet to discuss future directions for Aboriginal health.

Topics will include:

  • Wellington Aboriginal Corporation Health Service (WACHS)
    – History and background
    – Service support
    – Service programs
  • Western Sydney and Nepean Blue Mountains Project: Service Delivery
    – Funding agreement
    – Structure and staffing
    – Financial and risk management
  • Western Sydney and Nepean Blue Mountains Project: Service Support
    – Community engagement and consultation
    – Infrastructure
    – Identity and recognition

pdfDownload flyer

More information: Anthony Carter, anthonyc@wachs.net.au

Forum transport registration: Rita McKenzie, rita.mckenzie@swahs.com.au

Source

Wellington Aboriginal Corporation Health Service
Aboriginal Health Services Community Forum
14 March 2017, 10.00am–1.00pm
Novotel Hotel, 33 Railway St, Rooty Hill

Cost: Free

16 March Close the Gap Day

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Aboriginal and Torres Strait Islander Peoples die 10-17 years younger than other Australians and it’s even worse in some parts of Australia. Register now and hold an activity of your choice in support of health equality across Australia.

Resources

Resource packs will be sent out from 1 February 2017.

We will also have a range of free downloadable resources available on our website

www.oxfam.org.au/closethegapday.

It is still important to register as this contributes to the overall success of the event.

More information and Register your event

16 March Close the Gap Day VISION 2020

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Indigenous Eye Health at the University of Melbourne would like to invite people to a two-day national conference on Indigenous eye health and the Roadmap to Close the Gap for Vision in March 2017. The conference will provide opportunity for discussion and planning for what needs to be done to Close the Gap for Vision by 2020 and is supported by their partners National Aboriginal Community Controlled Health Organisation, Optometry Australia, Royal Australian and New Zealand College of Ophthalmologists and Vision 2020 Australia.

Collectively, significant progress has been made to improve Indigenous eye health particularly over the past five years and this is an opportunity to reflect on the progress made. The recent National Eye Health Survey found the gap for blindness has been reduced but is still three times higher. The conference will allow people to share the learning from these experiences and plan future activities.

The conference is designed for those working in all aspects of Indigenous eye care: from health workers and practitioners, to regional and jurisdictional organisations. It will include ACCHOs, NGOs, professional bodies and government departments.

The topics to be discussed will include:

  • regional approaches to eye care
  • planning and performance monitoring
  • initiatives and system reforms that address vision loss
  • health promotion and education.

Contacts

Indigenous Eye Health – Minum Barreng
Level 5, 207-221 Bouverie Street
Melbourne School of Population and Global Health
The University of Melbourne
Carlton Vic 3010
Ph: (03) 8344 9320
Email:

Links

22 March2017 Indigenous Ear Health Workshop  in Adelaide

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The 2017 Indigenous Ear Health Workshop to be held in Adelaide in March will focus on Otitis Media (middle ear disease), hearing loss, and its significant impact on the lives of Indigenous children, the community and Indigenous culture in Australia.

The workshop will take place on 22 March 2017 at the Adelaide Convention Centre in Adelaide, South Australia.

The program features keynote addresses by invited speakers who will give presentations aligned with the workshop’s main objectives:

  • To identify and promote methods to strengthen primary prevention and care of Otitis Media (OM).
  • To engage and coordinate all stakeholders in OM management.
  • To summarise current and future research into OM pathogenesis (the manner in which it develops) and management.
  • To present the case for consistent and integrated funding for OM management.

Invited speakers will include paediatricians, public health physicians, ear nose and throat surgeons, Aboriginal health workers, Education Department and a psychologist, with OM and hearing updates from medical, audiological and medical science researchers.

The program will culminate in an address emphasising the need for funding that will provide a consistent and coordinated nationwide approach to managing Indigenous ear health in Australia.

Those interested in attending may include: ENT surgeons, ENT nurses, Aboriginal and Torres Strait Islander health workers, audiologists, rural and regional general surgeons and general practitioners, speech pathologists, teachers, researchers, state and federal government representatives and bureaucrats; in fact anyone interested in Otitis Media.

The workshop is organised by the Australian Society of Otolaryngology Head and Neck Surgery (ASOHNS) and is held just before its Annual Scientific Meeting (23 -26 March 2017). The first IEH workshop was held in Adelaide in 2012 and subsequent workshops were held in Perth, Brisbane and Sydney.

For more information go to the ASOHNS 2017 Annual Scientific Meeting Pre-Meeting Workshops section at http://asm.asohns.org.au/workshops

Or contact:

Mrs Lorna Watson, Chief Executive Officer, ASOHNS Ltd

T: +61 2 9954 5856   or  E info@asohns.org.au

29 March: RHDAustralia Education Workshop Adelaide SA

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Download the PDF brochure sa-workshop-flyer

More information and registrations HERE

26- 29 April The 14 th National Rural Health Conference Cairns c42bfukvcaam3h9

INFO Register

29 April : 14th World Rural Health Conference Cairns

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The conference program features streams based on themes most relevant to all rural and remote health practitioners. These include Social and environmental determinants of health; Leadership, Education and Workforce; Social Accountability and Social Capital, and Rural Clinical Practices: people and services.

Download the program here : rural-health-conference-program-no-spreads

The program includes plenary/keynote sessions, concurrent sessions and poster presentations. The program will also include clinical sessions to provide skill development and ongoing professional development opportunities :

Information Registrations HERE

10 May: National Indigenous Human Rights Awards

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” The National Indigenous Human Rights Awards recognises Aboriginal and Torres Strait Islander persons who have made significant contribution to the advancement of human rights and social justice for their people.”

To nominate someone for one of the three awards, please go to https://shaoquett.wufoo.com/forms/z4qw7zc1i3yvw6/
 
For further information, please also check out the Awards Guide at https://www.scribd.com/document/336434563/2017-National-Indigenous-Human-Rights-Awards-Guide
26 May :National Sorry day 2017
 
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The first National Sorry Day was held on 26 May 1998 – one year after the tabling of the report Bringing them Home, May 1997. The report was the result of an inquiry by the Human Rights and Equal Opportunity Commission into the removal of Aboriginal and Torres Strait Islander children from their families.
2-9 July NAIDOC WEEK
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The importance, resilience and richness of Aboriginal and Torres Strait Islander languages will be the focus of national celebrations marking NAIDOC Week 2017.

The 2017 theme – Our Languages Matter – aims to emphasise and celebrate the unique and essential role that Indigenous languages play in cultural identity, linking people to their land and water and in the transmission of Aboriginal and Torres Strait Islander history, spirituality and rites, through story and song.

More info about events

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