NACCHO Aboriginal & Torres Strait Islander Health News: NACCHO CEO reflects on successful conference

The image in the feature tile is of Jadlyn David De Bush and Daniel Rosedal presenting feedback from the 76 delegates at the NACCHO Youth Conference 2022 to the 500 delegates at the NACCHO Members’ Conference 2022. Image source: NACCHO Australia Twitter post, 20 October 2022.

NACCHO CEO reflects on successful conference

In closing the NACCHO Members’ Conference 2022, NACCHO CEO Pat Turner AM said it had been a wonderful event, with it being “great to be able connect to people face-to-face rather than the virtual connections we’ve had over the last 3 years with COVID-19 preventing us from being able to get together like this.”

Ms Turner said the NACCHO Members’ Conference is not only an opportunity to strengthen our network and get to know each other better but to hear about the amazing work that is being done right around the country, saying it was a testimony to the strength of the sector to come together, noting it was a long way for many and expensive.

Ms Turner said she hoped attendees at the conference had been inspired to pick up on good ideas and best practice shared at the conference and that they would be used to continue to strengthen the delivery of health services to our people. Ms Turner said we have got to be able to get the governments to understand the importance of the environments our people live in and what a negative effect overcrowded housing and unhealthy environments have on our people’s health, “as part of the comprehensive primary health care model its our job at every level to advocate for our communities in those areas as well.”

Housing shortage potentially “life-threatening”

Preston Mapuyu is on a public housing waitlist that on average takes more than half a decade to see any movement – but due to a chronic lung condition, he may not have that long to wait. Nurses in remote north-east Arnhem Land say a housing shortage has become potentially “life-threatening for patients” such as Mr Mapuyu, and is simultaneously burdening the health system.

Mr Mapuyu’s inability to access public housing has meant he’s been forced to rely on the kindness of relatives for accommodation, often overcrowded and unsuitable for someone with his condition. He and his wife, Serena Munyarryun, were living on a remote homeland 100km from the nearest hospital, where access via dirt road is seasonal and emergency planes can only land during the day. “If we call emergency for ambulance to get here, sometimes it takes them three to four hours to get here,” Ms Munyarryun said.

The pair has applied to access public housing in the nearest township of Nhulunbuy but, given a Territory-wide public housing shortage, they’re up against it. NT government data shows there is an average wait of six to eight years for applicants in Nhulunbuy. That stretches up to a decade for those seeking housing in hubs like Alice Springs. Across the NT there are nearly 6,000 applications for housing, but only 162 homes listed as vacant.

To view the ABC News article NT government’s years-long public housing waitlist putting a strain on remote health system in full click here.

Serena Munyarryun and Preston Mapuyu could be forced to wait years for public housing. Photo: Michael Franchi, ABC News.

RHD landmark study makes inroads

An entirely preventable “killer” disease plaguing remote communities in the NT will never end unless Aboriginal workers become the backbone of prevention, an Indigenous health organisation warns. Sunrise Health chairperson Anne-Marie Lee is the co-author of a four-year, landmark study – published in the International Journal of Environmental Research Public Health – which was conducted in three Aboriginal communities where it is not uncommon to see children under 10 bearing the vertical, long scars of open-heart surgery.

“Nothing can work in Indigenous communities unless you employ local people,” Ms Lee said. “Rheumatic heart disease (RHD) is a killer. It’s a killer, and it’s killing a lot of my young ones.” RHD is mostly eradicated in first world countries and is only found in the most disadvantaged areas of developing countries. But in Australia, rates in remote Aboriginal communities beset by social disadvantage are among the highest in the world.

Studies to date have largely focused on secondary and tertiary prevention once somebody’s already been diagnosed, instead of the root causes, such as addressing severe overcrowding in houses and a lack of effective education. Ms Lee said in her community of Barunga, about an hour’s drive from Katherine, there was not enough suitable information about the disease for families. She lamented the notion that short-term fly-in-fly-out health workers could make meaningful inroads. “We need more of me … because they trust us,” Ms Lee said.

To view the ABC News article Rheumatic heart disease still killing Australian children but a landmark study makes inroads in full click here.

Anne-Marie Lee [L] says rates of RHD fell in her community during the study. Photo: Menzies School of Health. Image source: ABC News.

Improving health for people with intellectual disability

The Australian Government is investing more than $5 million in four research projects to improve the long-term health outcomes of people with intellectual disability. Funded by the National Health and Medical Research Council (NHMRC), the research will develop the evidence base for future policies, interventions and other initiatives to improve the quality of life of people with an intellectual disability. A key factor in each of the projects is the involvement of people with intellectual disability, their families and carers in the design of the research and implementation.

Professor Sandra Eades from the University of Melbourne has received $792,020 to undertake a research project: Equitable access to health and disability services for Aboriginal and Torres Strait Islander children with intellectual disability.

This project will improve the health and wellbeing of Indigenous children with intellectual disability by recommending effective models of care to ensure appropriate, timely diagnoses and access to high-quality health and disability services. National Disability Insurance Scheme data and interviews with families, adolescents with intellectual disability, and healthcare and disability services will be analysed to identify barriers and facilitators to meeting the healthcare needs of Indigenous children with intellectual disability.

To view Minister Butler’s media release Improving long-term health outcomes for people with intellectual disability in full click here.

Image source: Supporting Aboriginal and Torres Strait Islander families of children with disabilities webpage of Community Early Learning Australia website.

Urapunga Store’s sugar cut success

Remote residents of Urapunga in the NT have reduced consumption of sugary drinks by 43% in the past year, due to a range of sugar-reduction measures implemented at their local grocery store. Urapunga Store, operated by the Urapunga Aboriginal Corporation and serviced by Outback Stores, has restricted the size of soft drinks sold, and implemented “Sugar-Free Wednesdays” – a day in which no full-sugar soft drinks are available for purchase.

“We knew the community was drinking too much sugar, so we came up with a plan to start changing that,” said Antonella Pascoe, board member of Urapunga Aboriginal Corporation. “As directors of the store, we felt like we could make a positive change.”

In the first six months, the proportion of sugary drinks sold has fallen by 4.7% which equates to 1,921 litres, or twelve bathtubs less of full-sugar soft drink consumed in the community. “We know that the community is now drinking less sugar,” says Ms Pascoe. “One of the best things is the way it has made the community think about what they are drinking, even on days when they can buy sugary drinks.

To view the Retail World article Urapunga Store’s sugar cut success in full click here.

Photo: Isabella Higgins, ABC News.

Sax Institute, a community-led research pioneer

The Sax Institute are pioneers of the community-led research model and have been building strong relationships with Aboriginal health organisations since 2003. These partnerships have been critical to enabling the design and conduct of health research that is most likely to meet the needs of Aboriginal communities and policy makers. The Sax Institute says these partnerships are an essential part of how they work and central to their success.

In 2003, Sax Institute formed a partnership with the Aboriginal Health and Medical Research Council (AH&MRC) to set up the Coalition for Research to Improve Aboriginal Health (CRIAH) as a vehicle for bringing together Aboriginal communities and leading research expertise to support better health outcomes.

Over the past 15 years, the Sax Institute has worked with a number of ACCHOs across NSW to improve the health and wellbeing of Aboriginal people. Through these partnerships, ACCHOs nominate their research priorities, control how the research is conducted and take the lead in determining what works for them and their communities.

Four ACCHOs – Tharawal Aboriginal Corporation, Riverina Medical and Dental Aboriginal Corporation, Awabakal and Greater Western Aboriginal Health Service – have been cornerstone partners with the Institute in developing the Study of Environment on Aboriginal Resilience and Child Health (SEARCH), Australia’s largest long-term study of the health and wellbeing of urban Aboriginal children.

You can find more information on the Partnerships – How we work webpage of the Sax Institute website here.

Image source: Sax Institute website.

Sector Jobs

Sector Jobs – you can see sector job listings on the NACCHO website here.

Advertising Jobs – to advertise a job vacancy click here to go to the NACCHO website Current job listings webpage. Scroll down to the bottom of the page to find a Post A Job form. You can complete this form with your job vacancy details – it will then be approved for posting and go live on the NACCHO website.

Children’s Week 2022

Saturday marked the beginning of Children’s Week 2022 (22-30 October). Children’s Week is an annual event celebrated in Australia held around the fourth Wednesday in October. A diverse range of events and activities at national, state and local levels focus the attention of the wider community on children, their rights and achievements. Children’s Week celebrates the right of children to enjoy childhood.

Children’s Week promotes the Rights of the Child as proclaimed by the United Nations in 1954. It also exists to remind us of our responsibility to advocate for children as citizens and their right to a positive childhood.

The 2022 Children’s Week theme All Children have the right to a standard of living that supports their wellbeing and healthy development aligns with Article 27 of the UN Convention on the Rights of the Child.

For more information about Children’s Week click here.

Logo: ClipartMax. Photo: The North West Star. Image source: The Pulse.

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