NACCHO Aboriginal Health and #MyHealthRecords : Download Evaluation of Participation Trials Report

 ” The report on the evaluation of the opt-out trials for My Health Record showed that the approach would help ensure the full health benefits of a shared electronic health record could be realised.

CHF has been calling for an opt-out system backed by strong community engagement and education and the findings of this report endorse that position

  Consumer Health Forum CEO Leanne Wells Press release below

The Guild has long supported an opt-out model for My Health Record as the clearest path to meaningful use of a national digital health record system .

“Community pharmacy, as the most accessible community health care destination, has always been at the forefront of digital innovation and an opt-out model for the operation of My Health Record will enable community pharmacies to enhance their patient care.

It will also foster better health professional collaboration between care settings and provide key clinical data at important points of care across a patient’s journey through the health care system.”

National President of the Pharmacy Guild, George Tambassis. See Full Press Release below

Download the 354 Page report here

Evaluation-of-the-My-Health-Record-Participation-Trials-Report

Read NACCHO E Health My Health Record articles over the past 5 years

Update From the Department of Health website

In July 2012, My Health Record (then called Personally Controlled Electronic Health Record) was launched.

This is a secure online summary of a person’s medications, diagnosed illnesses, treatments, allergies and tests.

Each person can control what goes onto their My Health Record, and who is allowed to see it.

For healthcare providers, knowing more about a patient’s medical history can lead to a better understanding of what is happening, and result in better treatment decisions.

In most parts of Australia individuals need to actively register for a My Health Record. From March to October 2016, trials of different participation arrangements were run.

The trials were of opt out arrangements in Northern Queensland and the Nepean Blue Mountains of New South Wales area, and innovative approaches to opt in in Western Australia and Ballarat.

The aim of the trials was to understand consumer reaction to different participation arrangements, as well as healthcare provider usage and upload of clinical information to the patients’ records, when most of their patients have a My Health Record.

These trials were conducted as a collaboration between the Department of Health (the Department), Primary Health Networks, the state health departments and relevant hospital and health services.

An independent evaluation of the trials commissioned by the Department of Health was conducted by Siggins Miller Consultants to look at the outcomes from these trials.

The Evaluation of the Participation Trials for the My Health Record is available below.

It will be used to inform future recommendations to the Government about the participation arrangements to best bring forward the benefits of the system to healthcare in Australia.

Consumer Health Forum CEO Leanne Wells Press release

Making My Health Record Work for Everyone

“We support a national opt-out roll out and support the report’s recommendation that this should be done in one national step. This would ensure a nationally consistent campaign would be rolled out and built on.”

“It is no surprise to us that once people have the benefits explained to them and their concerns around privacy and confidentiality addressed that they are happy to have and use the My Health Record. It is good to see that people not only do not opt out of the record but have started to use it” said Ms Wells.

“People are using their My Health Record because they recognise benefits of information bring shared, care being connected and duplicate tests bring avoided “

“The report shows that more work need to be done to raise awareness of the benefits of electronic health records. We support the report’s call for a comprehensive nationally driven but locally supported communication strategy that is targeted at consumers and health care providers. “

“This needs to be properly resourced and should be developed with consumer and health care provider input. It also needs to involve local community leaders who can be strong agents for change and champions of the roll-out.”

“We need to anticipate and avoid roadblocks to use of this vital new piece of our health care system future. We welcome the report’s acknowledgement that there is a need to streamline and improve access because consumers in the pilots found this to be a barrier.  Whether this is through improving My Gov or moving away from it completely, the important issue is that it makes it easier for consumers to use.”

For a national roll out to be successful  we need the Government to  commit  to further investment in their consumer facing infrastructure so that the system is reliable, accessible and resourced appropriately into the future” said Ms Wells ‘

We believe that if implemented the report’s 31 recommendations would deliver a world class system. It is important to remember that this is the first stage and the system will evolve.”

“Such major, deeply needed, change cannot be done on the cheap. To this end we reiterate our call that the government move away from the current budgetary requirement for all new health expenditure to be offset by savings in the health portfolio.”

My Health Record should be opt out, says the Guild

The Pharmacy Guild of Australia has welcomed the success of the My Health Record trials which it says have confirmed the overwhelming benefits of the ‘opt out’ model involving automatic creation of patient records.

The formal evaluation of the trials, published today, has recommended that the Federal Government proceed to a national opt-out approach – a recommendation which the Guild says it fully supports.

The evaluation report says in part: “Taking all the data into consideration we can see no reason not to proceed with an opt-out approach in one national step rather than any progressive staged approach.”

The opt-out trials were conducted in the Northern Queensland PHN, and in the Nepean Blue Mountains PHN, with the final report on the trials completed in November last year. The opt-out trials included community pharmacists among the healthcare providers who took part.

When compared with two opt-in trials conducted in Ballarat and Perth, the opt-out trials achieved better outcomes in terms of participation, understanding and some aspects of use of the My Health Record system.

“The Guild has long supported an opt-out model for My Health Record as the clearest path to meaningful use of a national digital health record system,” said National President of the Pharmacy Guild, George Tambassis.

“Community pharmacy, as the most accessible community health care destination, has always been at the forefront of digital innovation and an opt-out model for the operation of My Health Record will enable community pharmacies to enhance their patient care.

“It will also foster better health professional collaboration between care settings and provide key clinical data at important points of care across a patient’s journey through the health care system.

“An opt-out model with also provide a greater opportunity to further realise community pharmacies’ digital health potential within the patient-centric care model,” Mr Tambassis said.

The Pharmacy Guild has been working with the Australian Digital Health Agency to explore ways to maximise the utilisation of community pharmacy as a vital component in the My Health Record system.

The My Health Record Participation Trials Evaluation Report is available on the health

Press Release AHHA  : Trial shows ‘opt-out’ model favoured for My Health Record

We are supportive of the “opt out” model for My Health Record, but with some important provisos’, says Alison Verhoeven, Chief Executive of the Australian Healthcare and Hospitals Association (AHHA).

Ms Verhoeven was commenting on today’s release by the Australian Government Department of Health of a government-commissioned evaluation of participation trials for My Health Record, involving ‘opt-in’ as well as ‘opt-out’ regimes.

My Health Record is a way of securely sharing an individual’s health information between registered healthcare providers involved in a person’s care. Currently, both individuals and healthcare providers have to opt in, that is, register to participate.

‘The report released today comes down overwhelmingly in favour of the opt-out method’, Ms Verhoeven said. ‘Under this model, a My Health Record is automatically created for individuals.

For individuals, not having to do anything to create the record was seen as a major plus, while for healthcare providers, assisting in creating My Health Records, which would have been needed for some patients under the ‘opt-in’ model, was seen as impractical without additional funding and ultimately would be unsustainable.

‘Once the system and its benefits were explained, individuals had minimal confidentiality or security concerns. ‘And, interestingly, most consumers were strongly of the opinion that healthcare providers should not be able to opt out of the system. ‘We support the opt-out model, while acknowledging that the government has no obligation to take on what has been recommended in the report released today.

‘We are however concerned that the existing infrastructure may not have the appropriate capacity to support the recommended change—anecdotal evidence indicates that the current system is already operating at close to capacity and will need to be significantly upgraded to effectively manage the millions of additional records.

‘It would therefore not be wise to rush into this if we want to get this important change right. ‘Given a national rollout is likely to require support by the PHNs, they must be afforded adequate time to undertake collaborative planning, local mapping of digital capacity and capability and the flexibility to respond to local issues and contexts. The phase-in should be well-planned, with comprehensive training and a very strong communications strategy—both to consumers and healthcare providers. ‘Communications cannot be emphasised strongly enough.

The report found that there was very low awareness in the community of the current My Health Record arrangements, and very low awareness among all types of healthcare providers of the online training available for the current My Health Record system.’

 

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