NACCHO Aboriginal Health #PalliativeCare : Supporting Indigenous people to talk about their end-of-life care

 

The end of someone’s life is a very special time in Aboriginal and Torres Strait Islander culture. To ensure people have the care they want, in the place they want, it is important to be able to plan and discuss their wishes,

For example, returning to country at the end of life and having a traditional burial are often important for many Aboriginal and Torres Strait Islander people.

Being able to discuss these wishes with family and their health care team means they are more likely to have the best death possible.”

CATSINaM CEO Janine Mohamed ( Pictured above with the on Ken Wyatt ) says these resources will help health care workers open conversations around end-of-life care in a culturally safe way.

See Ministers Press Release below

New resources launched today by the Hon Ken Wyatt, Minister for Indigenous Health, will help Aboriginal and Torres Strait Islander people discuss their end-of-life care wishes with their families and health care teams.

The Aboriginal and Torres Strait Islander Dying to Talk resources were developed in partnership by Palliative Care Australia (PCA) and the Congress of Aboriginal and Torres Strait Islander Nurses and Midwives (CATSINaM).

PCA CEO Liz Callaghan says the resources were developed after consultations with Indigenous health organisations that identified the need for a specific resource for Aboriginal and Torres Strait Islander people.

“The Aboriginal and Torres Strait Islander specific resources have been developed to support advance care planning and end-of-life discussions,” Ms Callaghan said.

“Focus groups were held with Aboriginal and Torres Strait Islander people to understand what barriers they had in discussing their end-of-life care wishes and planning for death. Those focus groups informed the design and content of the Discussion Starter and the Dying to Talk Cards to ensure they were culturally safe and useful.

“I also thank the Australian Indigenous Doctors’ Association and Indigenous Allied Health Australia for their input on this project.”

The resources can be accessed at http://dyingtotalk.org.au/and printed resources can be provided by request pcainc@palliativecare.org.au.

Palliative Care Australia is funded by the Australian Government.

New resources to help Indigenous Australians broach end of life discussions

A discussion starter about end of life care, specifically developed for Aboriginal and Torres Strait Islander people, was launched at Parliament House by the Minister for Aged Care and Minister for Indigenous Health, Ken Wyatt.

Page last updated: 28 March 2017 8.15 pm

PDF printable version of New resources to help Indigenous Australians broach end of life discussions – PDF 311 KB

A discussion starter about end of life care, specifically developed for Aboriginal and Torres Strait Islander people, was launched today at Parliament House by the Minister for Aged Care and Minister for Indigenous Health, Ken Wyatt.

Launching the Dying toTalk resources, Minister Wyatt said that starting a discussion about dying is never easy and can be hard when we want to talk to our families and friends about dying but they don’t want to listen.

“Sometimes, we put these discussions off because its confronting and we don’t want to face our own mortality,” he said.

“No matter what the reasons, I am very grateful to live in a country that has such a strong palliative care system in place and palliative care health professionals who help us tackle these discussions.

“I hope that today, with the launch of these new resources, we edge a little closer to making these conversations less difficult and more open.”

The Dying toTalk resources include a culturally appropriate step-by-step guide to make those difficult discussions about death that bit easier and a set of cards that can be used as a tool to start the conversations.

“Throughout the pages of the discussion paper and on the cards it asks us to consider a number of critical questions,” Minister Wyatt said.

“It’s structured. It’s succinct. It’s clear. It helps start the discussion about what would happen if you or a loved one were sick.”

“When you are sick, what would happen to your family? What would happen to your belongings? What sort of health care do you want? How important is it to visit country? How important is it to be on country when you die?

“These are all questions that need to be asked, and answered when we are still able to make our wishes known to the people we care about.”

The Australian Government provided $95,000 to Palliative Care Australia to develop the Dying toTalk resources which has been co-designed with the support of the Congress of Aboriginal and Torres Strait Islander Nurses and Midwives, Indigenous Allied Health Australia and the Australian Indigenous Doctors’ Association.

“The resources will be distributed across Australia to Aboriginal Medical Services and Aboriginal Health Services which will in turn help Aboriginal and Torres Strait Islander people start a discussion about dying in a way that is helpful, constructive and compassionate,” Minister Wyatt said.

“It will help Aboriginal and Torres Strait Islander people have the most difficult of discussions, with respect and dignity.”

The resources can be accessed at the Dying toTalk website.

 

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